Heidi Howard

Heidi Howard

Researcher, Dr.

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Research

Heidi Carmen Howard is a researcher in Medical Ethics at Lund University (Sweden) leading a multidisciplinary team working on the policy, ethical, legal, and social aspects of new technologies, especially in genetics and genomics.

Google Scholar Profile: https://tinyurl.com/4ruwrjhc

www.linkedin.com/in/heidi-carmen-howard-bioethics

Her research focuses on using multi- and interdisciplinary approaches with a large emphasis on empirical research to study the challenges and implications of novel technologies (e.g. gene editing, next generation sequencing, Artificial intelligence in health care) and their responsible translation for end users and society. Current projects include themes such as ELSI of data-driven life science; consent for genomics in the clinic and gene editing in research; interview study of expert views on gene editing; policies for national genome projects (Genome Medicine Sweden); analysis of empirical data on the international survey Your DNA Your Say; engagement approaches and meaning in the debate on germ line gene editing in humans.

She has also worked extensively on commercial genomics and direct-to-consumer genetics; (forensic) biobanking; public health genomics; participant-centric research initiatives; public engagement and how best to merge different stakeholder voices in policy; as well as conceptual issues related to risk information and uncertainty in genetics and genomics.

Dr. Howard is the principal investigator of a Swedish Research Council (VR) funded-grant (480,000 Euro; 2018-2022) on the ELSI of gene editing. She is a GENIE initiative visiting scholar at Chalmers University and is an active member of the European Society of Human Genetics ELSI group (the Public and professional policy committee) for which she has co-authored many policy documents in genetics and genomics (https://www.eshg.org/index.php?id=pppc). She is on the ethics committee of EIT Health and is a visiting scholar at the Sanger Welcome Trust Campus (Hinxton, UK since 2016) in the team of Dr. Anna Middleton.

Dr. Howard has an H-index of 31; has co-authored over 90 articles in international peer-reviewed journals, including journals such as Science, Nature, and Nature Genetics. She is an avid reader of fiction and will happily discuss books by Margaret Atwood (from her native Canada), Ayn Rand, and Delphine de Vigan.

 

 

 

Expertise related to UN Sustainable Development Goals

In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):

  • SDG 3 - Good Health and Well-being

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Collaborations and top research areas from the last five years

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  • Reply to Letter by Tellier et al., ‘Scientific refutation of ESHG statement on embryo selection’

    Forzano, F., Antonova, O., Clarke, A., de Wert, G., Hentze, S., Jamshidi, Y., Moreau, Y., Perola, M., Prokopenko, I., Read, A., Reymond, A., Stefansdottir, V., van El, C., Genuardi, M., Peterlin, B., Oliveira, C., Writzl, K., Houge, G. D., Cordier, C., Howard, H., & 8 othersMacek, M., Melegh, B., Mendes, A., Radojkovic, D., Rial-Sebbag, E., Ulph, F., Executive Committee of the European Society of Human Genetics & Public and Professional Policy Committee of the European Society of Human Genetics, 2023, In: European Journal of Human Genetics. 31, 3, p. 279-281

    Research output: Contribution to journal › Letter › peer-review

    Open Access

  • Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Feijao, C., de Freitas, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain Sheikh, Z., Malmgren, C. I., Izhevskaya, V. L., & 27 othersJędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, E., Patch, C., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., Yoshizawa, G. & Middleton, A., 2022, In: Genetics in Medicine. 24, 5, p. 1120-1129

    Research output: Contribution to journal › Article › peer-review

    Open Access

  • The use of polygenic risk scores in pre-implantation genetic testing: an unproven, unethical practice

    Forzano, F., Antonova, O., Clarke, A., de Wert, G., Hentze, S., Jamshidi, Y., Moreau, Y., Perola, M., Prokopenko, I., Read, A., Reymond, A., Stefansdottir, V., van El, C., Genuardi, M., Peterlin, B., Oliveira, C., Writzl, K., Houge, G. D., Cordier, C., Howard, H., & 8 othersMacek, M., Melegh, B., Mendes, A., Radojkovic, D., Rial-Sebbag, E., Ulph, F., on behalf of the Executive Committee of the European Society of Human Genetics & the Public and Professional Policy Committee of the European Society of Human Genetics, 2022 May, In: European Journal of Human Genetics. 30, 5, p. 493-495 3 p.

    Research output: Contribution to journal › Article › peer-review

    Open Access

  • Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Milne, R., Morley, K. I., Almarri, M. A., Anwer, S., Atutornu, J., Baranova, E. E., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, H. C., Hussain, S. Z., Malmgren, C. I., Izhevskaya, V. L., & 30 othersJędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, E., Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, H. A., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, T. H., Wang, N., West, A. V., Yoshizawa, G. & Middleton, A., 2021 Dec 1, In: Genome Medicine. 13, 1, 92.

    Research output: Contribution to journal › Article › peer-review

    Open Access

  • Opportunistic genomic screening. Recommendations of the European Society of Human Genetics

    de Wert, G., Dondorp, W., Clarke, A., Dequeker, E. M. C., Cordier, C., Deans, Z., van El, C. G., Fellmann, F., Hastings, R., Hentze, S., Howard, H., Macek, M., Mendes, A., Patch, C., Rial-Sebbag, E., Stefansdottir, V., Cornel, M. C. & Forzano, F., 2021, In: European Journal of Human Genetics. 29, 3, p. 365-377

    Research output: Contribution to journal › Article › peer-review

    Open Access
View all 39 research outputs