Are Treatment Satisfaction, Quality of Life, and Self-assessed Disease Severity Relevant Parameters for Patient Registries? Experiences from Finnish and Swedish Patients with Psoriasis.

Catharina Hjortsberg, Annika Bergman, Anton Bjarnason, Hannele Heikkilä, Jonas Hjelmgren, Åke Svensson, Gunnel Ragnarson Tennvall

Research output: Contribution to journalArticlepeer-review

21 Citations (SciVal)

Abstract

Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment satisfaction, disease severity and health-related quality of life. The individual disease burden on patients should play a central role in formulating treatment goals. Clinician- and patient-based perspectives of the overall impact of psoriasis can assist clinical decision-making and evaluations of treatments.
Original languageEnglish
Pages (from-to)409-414
JournalActa Dermato-Venereologica
Volume91
DOIs
Publication statusPublished - 2011

Bibliographical note

The information about affiliations in this record was updated in December 2015.
The record was previously connected to the following departments: Department of Dermatology and Venerology (013241320)

Subject classification (UKÄ)

  • Dermatology and Venereal Diseases

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