Children's Views on Long-Term Screening for Type 1 Diabetes.

Ulrica Swartling, Gert Helgesson, Johnny Ludvigsson, Mats G Hansson, Anders Nordgren

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Abstract

There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry.
Original languageEnglish
Pages (from-to)1-9
JournalJournal of Empirical Research on Human Research Ethics
Volume9
Issue number4
DOIs
Publication statusPublished - 2014

Subject classification (UKÄ)

  • Endocrinology and Diabetes

Free keywords

  • research ethics
  • screening
  • children
  • type 1 diabetes
  • assent

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