European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology

Suleman Aktaa; Chris P. Gale; Margarita Brida; George Giannakoulas; Gabor Kovacs; Yochai Adir; Raymond L. Benza; Michael Böhm; Andrew Coats; Michele D'Alto; Pilar Escribano-Subias; Pisana Ferrari; Nazzareno Galiè; J. Simon R. Gibbs; Wendy Gin-Sing; Marius M. Hoeper; Marc Humbert; Irene M. Lang; Bradley A. Maron; Gergely Meszaros; Anton V. Noordegraaf; Laura C. Price; Joanna Pepke-Zaba; Göran Rådegran; Abilio Reis; Olivier Sitbon; Adam Torbicki; Silvia Ulrich; Stephan Rosenkranz; Marion Delcroix

doi:10.1002/ejhf.2830

European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology

Suleman Aktaa, Chris P. Gale, Margarita Brida, George Giannakoulas, Gabor Kovacs, Yochai Adir, Raymond L. Benza, Michael Böhm, Andrew Coats, Michele D'Alto, Pilar Escribano-Subias, Pisana Ferrari, Nazzareno Galiè, J. Simon R. Gibbs, Wendy Gin-Sing, Marius M. Hoeper, Marc Humbert, Irene M. Lang, Bradley A. Maron, Gergely MeszarosAnton V. Noordegraaf, Laura C. Price, Joanna Pepke-Zaba, Göran Rådegran, Abilio Reis, Olivier Sitbon, Adam Torbicki, Silvia Ulrich, Stephan Rosenkranz, Marion Delcroix

Research output: Contribution to journal › Article › peer-review

Abstract

Aims: To develop a suite of quality indicators (QIs) for the evaluation of the care and outcomes for adults with pulmonary arterial hypertension (PAH). Methods and results: We followed the European Society of Cardiology (ESC) methodology for the development of QIs. This included (i) the identification of key domains of care for the management of PAH, (ii) the proposal of candidate QIs following systematic review of the literature, and (iii) the selection of a set of QIs using a modified Delphi method. The process was undertaken in parallel with the writing of the 2022 ESC/European Respiratory Society (ERS) guidelines for the diagnosis and treatment of pulmonary hypertension and involved the Task Force chairs, experts in PAH, Heart Failure Association (HFA) members and patient representatives. We identified five domains of care for patients with PAH: structural framework, diagnosis and risk stratification, initial treatment, follow-up, and outcomes. In total, 23 main and one secondary QIs for PAH were selected. Conclusion: This document presents the ESC QIs for PAH, describes their development process and offers scientific rationale for their selection. The indicators may be used to quantify and improve adherence to guideline-recommended clinical practice and improve patient outcomes.

Original language	English
Pages (from-to)	469-477
Number of pages	9
Journal	European Journal of Heart Failure
Volume	25
Issue number	4
DOIs	https://doi.org/10.1002/ejhf.2830
Publication status	Published - 2023

Subject classification (UKÄ)

Cardiology and Cardiovascular Disease

Free keywords

Accountability
Clinical practice guidelines
Outcomes
Pulmonary arterial hypertension
Quality indicators
Treatment

Access to Document

10.1002/ejhf.2830

Fingerprint

Dive into the research topics of 'European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology'. Together they form a unique fingerprint.

Cite this

Aktaa, S., Gale, C. P., Brida, M., Giannakoulas, G., Kovacs, G., Adir, Y., Benza, R. L., Böhm, M., Coats, A., D'Alto, M., Escribano-Subias, P., Ferrari, P., Galiè, N., Gibbs, J. S. R., Gin-Sing, W., Hoeper, M. M., Humbert, M., Lang, I. M., Maron, B. A., ... Delcroix, M. (2023). European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology. European Journal of Heart Failure, 25(4), 469-477. https://doi.org/10.1002/ejhf.2830

@article{c439f572367245bb93922f574a32494c,

title = "European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology",

abstract = "Aims: To develop a suite of quality indicators (QIs) for the evaluation of the care and outcomes for adults with pulmonary arterial hypertension (PAH). Methods and results: We followed the European Society of Cardiology (ESC) methodology for the development of QIs. This included (i) the identification of key domains of care for the management of PAH, (ii) the proposal of candidate QIs following systematic review of the literature, and (iii) the selection of a set of QIs using a modified Delphi method. The process was undertaken in parallel with the writing of the 2022 ESC/European Respiratory Society (ERS) guidelines for the diagnosis and treatment of pulmonary hypertension and involved the Task Force chairs, experts in PAH, Heart Failure Association (HFA) members and patient representatives. We identified five domains of care for patients with PAH: structural framework, diagnosis and risk stratification, initial treatment, follow-up, and outcomes. In total, 23 main and one secondary QIs for PAH were selected. Conclusion: This document presents the ESC QIs for PAH, describes their development process and offers scientific rationale for their selection. The indicators may be used to quantify and improve adherence to guideline-recommended clinical practice and improve patient outcomes.",

keywords = "Accountability, Clinical practice guidelines, Outcomes, Pulmonary arterial hypertension, Quality indicators, Treatment",

author = "Suleman Aktaa and Gale, {Chris P.} and Margarita Brida and George Giannakoulas and Gabor Kovacs and Yochai Adir and Benza, {Raymond L.} and Michael B{\"o}hm and Andrew Coats and Michele D'Alto and Pilar Escribano-Subias and Pisana Ferrari and Nazzareno Gali{\`e} and Gibbs, {J. Simon R.} and Wendy Gin-Sing and Hoeper, {Marius M.} and Marc Humbert and Lang, {Irene M.} and Maron, {Bradley A.} and Gergely Meszaros and Noordegraaf, {Anton V.} and Price, {Laura C.} and Joanna Pepke-Zaba and G{\"o}ran R{\aa}degran and Abilio Reis and Olivier Sitbon and Adam Torbicki and Silvia Ulrich and Stephan Rosenkranz and Marion Delcroix",

year = "2023",

doi = "10.1002/ejhf.2830",

language = "English",

volume = "25",

pages = "469--477",

journal = "European Journal of Heart Failure",

issn = "1388-9842",

publisher = "Elsevier",

number = "4",

}

Aktaa, S, Gale, CP, Brida, M, Giannakoulas, G, Kovacs, G, Adir, Y, Benza, RL, Böhm, M, Coats, A, D'Alto, M, Escribano-Subias, P, Ferrari, P, Galiè, N, Gibbs, JSR, Gin-Sing, W, Hoeper, MM, Humbert, M, Lang, IM, Maron, BA, Meszaros, G, Noordegraaf, AV, Price, LC, Pepke-Zaba, J, Rådegran, G, Reis, A, Sitbon, O, Torbicki, A, Ulrich, S, Rosenkranz, S & Delcroix, M 2023, 'European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology', European Journal of Heart Failure, vol. 25, no. 4, pp. 469-477. https://doi.org/10.1002/ejhf.2830

European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology. / Aktaa, Suleman; Gale, Chris P.; Brida, Margarita et al.
In: European Journal of Heart Failure, Vol. 25, No. 4, 2023, p. 469-477.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - European Society of Cardiology quality indicators for the care and outcomes of adults with pulmonary arterial hypertension. Developed in collaboration with the Heart Failure Association of the European Society of Cardiology

AU - Aktaa, Suleman

AU - Gale, Chris P.

AU - Brida, Margarita

AU - Giannakoulas, George

AU - Kovacs, Gabor

AU - Adir, Yochai

AU - Benza, Raymond L.

AU - Böhm, Michael

AU - Coats, Andrew

AU - D'Alto, Michele

AU - Escribano-Subias, Pilar

AU - Ferrari, Pisana

AU - Galiè, Nazzareno

AU - Gibbs, J. Simon R.

AU - Gin-Sing, Wendy

AU - Hoeper, Marius M.

AU - Humbert, Marc

AU - Lang, Irene M.

AU - Maron, Bradley A.

AU - Meszaros, Gergely

AU - Noordegraaf, Anton V.

AU - Price, Laura C.

AU - Pepke-Zaba, Joanna

AU - Rådegran, Göran

AU - Reis, Abilio

AU - Sitbon, Olivier

AU - Torbicki, Adam

AU - Ulrich, Silvia

AU - Rosenkranz, Stephan

AU - Delcroix, Marion

PY - 2023

Y1 - 2023

N2 - Aims: To develop a suite of quality indicators (QIs) for the evaluation of the care and outcomes for adults with pulmonary arterial hypertension (PAH). Methods and results: We followed the European Society of Cardiology (ESC) methodology for the development of QIs. This included (i) the identification of key domains of care for the management of PAH, (ii) the proposal of candidate QIs following systematic review of the literature, and (iii) the selection of a set of QIs using a modified Delphi method. The process was undertaken in parallel with the writing of the 2022 ESC/European Respiratory Society (ERS) guidelines for the diagnosis and treatment of pulmonary hypertension and involved the Task Force chairs, experts in PAH, Heart Failure Association (HFA) members and patient representatives. We identified five domains of care for patients with PAH: structural framework, diagnosis and risk stratification, initial treatment, follow-up, and outcomes. In total, 23 main and one secondary QIs for PAH were selected. Conclusion: This document presents the ESC QIs for PAH, describes their development process and offers scientific rationale for their selection. The indicators may be used to quantify and improve adherence to guideline-recommended clinical practice and improve patient outcomes.

AB - Aims: To develop a suite of quality indicators (QIs) for the evaluation of the care and outcomes for adults with pulmonary arterial hypertension (PAH). Methods and results: We followed the European Society of Cardiology (ESC) methodology for the development of QIs. This included (i) the identification of key domains of care for the management of PAH, (ii) the proposal of candidate QIs following systematic review of the literature, and (iii) the selection of a set of QIs using a modified Delphi method. The process was undertaken in parallel with the writing of the 2022 ESC/European Respiratory Society (ERS) guidelines for the diagnosis and treatment of pulmonary hypertension and involved the Task Force chairs, experts in PAH, Heart Failure Association (HFA) members and patient representatives. We identified five domains of care for patients with PAH: structural framework, diagnosis and risk stratification, initial treatment, follow-up, and outcomes. In total, 23 main and one secondary QIs for PAH were selected. Conclusion: This document presents the ESC QIs for PAH, describes their development process and offers scientific rationale for their selection. The indicators may be used to quantify and improve adherence to guideline-recommended clinical practice and improve patient outcomes.

KW - Accountability

KW - Clinical practice guidelines

KW - Outcomes

KW - Pulmonary arterial hypertension

KW - Quality indicators

KW - Treatment

U2 - 10.1002/ejhf.2830

DO - 10.1002/ejhf.2830

M3 - Article

C2 - 36924171

AN - SCOPUS:85152019508

SN - 1388-9842

VL - 25

SP - 469

EP - 477

JO - European Journal of Heart Failure

JF - European Journal of Heart Failure

IS - 4

ER -