TY - JOUR
T1 - Long-term survivors of childhood cancer
T2 - cure and care—the Erice Statement (2006) revised after 10 years (2016)
AU - Jankovic, Momcilo
AU - Haupt, Riccardo
AU - Spinetta, John J.
AU - Beck, Joern D.
AU - Byrne, Julianne
AU - Calaminus, Gabriele
AU - Lackner, Herwig
AU - Biondi, Andrea
AU - Oeffinger, Kevin
AU - Hudson, Melissa
AU - Skinner, Roderick
AU - Reaman, Gregory
AU - van der Pal, Helena
AU - Kremer, Leontien
AU - Den Hartogh, Jaap
AU - Michel, Gisela
AU - Frey, Eva
AU - Bardi, Edit
AU - Hawkins, Michael
AU - Rizvi, Katie
AU - Terenziani, Monica
AU - Valsecchi, Maria Grazia
AU - Bode, Gerlind
AU - Jenney, Meriel
AU - de Vathaire, Florent
AU - Garwicz, Stanislaw
AU - Levitt, Gill A.
AU - Grabow, Desiree
AU - Kuehni, Claudia E.
AU - Schrappe, Martin
AU - Hjorth, Lars
AU - participants in PanCare
PY - 2018
Y1 - 2018
N2 - Purpose: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. Methods: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778–80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. Results: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. “Cure” refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child. Conclusions and implication for cancer survivors: Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).
AB - Purpose: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. Methods: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778–80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. Results: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. “Cure” refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child. Conclusions and implication for cancer survivors: Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).
KW - Childhood care
KW - Childhood cure
KW - Health
KW - Quality of life
UR - http://www.scopus.com/inward/record.url?scp=85049070999&partnerID=8YFLogxK
U2 - 10.1007/s11764-018-0701-0
DO - 10.1007/s11764-018-0701-0
M3 - Article
C2 - 29946794
AN - SCOPUS:85049070999
SN - 1932-2259
VL - 12
SP - 647
EP - 650
JO - Journal of Cancer Survivorship
JF - Journal of Cancer Survivorship
IS - 5
ER -