Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy

Marie Louise Möllerberg, Ulrica Langegård, Emma Ohlsson-Nevo, Per Fransson, Birgitta Johansson, Karin Ahlberg, Katarina Sjövall

Research output: Contribution to journalArticlepeer-review

2 Citations (SciVal)

Abstract

Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.

Original languageEnglish
Pages (from-to)1157-1163
Number of pages7
JournalNursing Open
Volume7
Issue number4
Early online date2020 Apr 14
DOIs
Publication statusPublished - 2020 Jul

Subject classification (UKÄ)

  • Nursing

Keywords

  • brain tumour
  • interviews
  • nursing
  • proton beam therapy
  • psychological adaptation
  • qualitative method
  • radiotherapy
  • social context
  • social support
  • staying away from home

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