Neonatal end-of-life care in Sweden.

Anita Lundqvist, Tore Nilstun, Anna-Karin Dykes

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Abstract

A survey was carried out of Swedish neonatal end-of-life regarding practice before birth, at birth, during dying and after death using a descriptive questionnaire with close-ended questions and individual comments

The practice in 32 of 38 neonatal units, as described by the head nurse or the registered nurses, was largely similar. Respectful treatment of both the neonate and the parents during neonatal end-of-life care was indicated

Differences were found in pre-natal care concerning the information about the risks of pre-term birth, the opportunity for parents to view a pre-term neonate and meet its family, as well as a social worker

Practice directly after birth was also different. A little less than half of the units answered that they gave a description of the seriously ill neonate to the parents before the first visit to the ward

Practice during dying indicated that only a few units permitted the neonate to die at home
Original languageEnglish
Pages (from-to)197-202
JournalNursing in critical care
Volume8
Issue number5
DOIs
Publication statusPublished - 2003

Bibliographical note

The information about affiliations in this record was updated in December 2015.
The record was previously connected to the following departments: Division of Nursing (Closed 2012) (013065000), Department of Medical Ethics (013230023)

Subject classification (UKÄ)

  • Nursing

Free keywords

  • Neonatal
  • Neonatal Nursing
  • Professional-Family Relations
  • Intensive Care
  • Newborn
  • Questionnaires
  • Sweden: epidemiology
  • Terminal Care: psychology
  • Attitude to Death
  • Human
  • Infant

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