Parental perceptions of health care for children with chronic illness--a population-based study in a Swedish primary care district

Lena Westbom, Lennart Köhler

Research output: Contribution to journalArticlepeer-review

Abstract

The division of responsibilities between specialized and primary health care for children with chronic illness is unclear. The utilization and perceptions of primary and specialized care were examined by means of a questionnaire mailed to the parents of all chronically ill children and a randomly selected control group. No difference in sociodemographic variables of responders (70%) and nonresponders was found. The study comprised 98 index and 168 control children. The index children utilized both primary and specialized care more than controls. The overall satisfaction with health care was high, but primary care did not come up to the expectations of many chronically ill children's parents. Satisfaction with specialized care but not with primary care had improved during the previous 15 years. Recognition in primary care of childhood chronic illnesses and their psychosocial consequences is important. In co-operation, the two health care levels together could enable a comprehensive, well-coordinated, and continuous care for these children.
Original languageEnglish
Pages (from-to)285-291
JournalScandinavian Journal of Primary Health Care
Volume9
Issue number4
DOIs
Publication statusPublished - 1991

Subject classification (UKÄ)

  • Health Care Service and Management, Health Policy and Services and Health Economy

Keywords

  • satisfaction with care
  • use of health services
  • child health care
  • chronic disease
  • primary health care

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