Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.

Carina Sparud-Lundin; Inger Hallström

doi:10.1177/1049732315575317

Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.

Carina Sparud-Lundin, Inger Hallström

Department of Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.

Original language	English
Journal	Qualitative Health Research
Early online date	2015 Mar 11
DOIs	https://doi.org/10.1177/1049732315575317
Publication status	Published - 2015

Bibliographical note

The information about affiliations in this record was updated in December 2015.
The record was previously connected to the following departments: Child, Family and Reproductive Health (013220003), The Vårdal Institute (016540000)

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Subject classification (UKÄ)

Health Care Service and Management, Health Policy and Services and Health Economy

Access to Document

10.1177/1049732315575317

http://www.ncbi.nlm.nih.gov/pubmed/25762706?dopt=Abstract

Cite this

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title = "Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.",

abstract = "Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.",

author = "Carina Sparud-Lundin and Inger Hallstr{\"o}m",

note = "The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Child, Family and Reproductive Health (013220003), The V{\aa}rdal Institute (016540000)",

year = "2015",

doi = "10.1177/1049732315575317",

language = "English",

journal = "Qualitative Health Research",

issn = "1049-7323",

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AU - Sparud-Lundin, Carina

AU - Hallström, Inger

N1 - The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Child, Family and Reproductive Health (013220003), The Vårdal Institute (016540000)

PY - 2015

Y1 - 2015

N2 - Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.

AB - Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.

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DO - 10.1177/1049732315575317

M3 - Article

C2 - 25762706

SN - 1049-7323

JO - Qualitative Health Research

JF - Qualitative Health Research

ER -

Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.

Abstract

Bibliographical note

UN SDGs

Subject classification (UKÄ)

Access to Document

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