Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care

Gerd Ahlström; Helena Rosén; Eva I. Persson

doi:10.3390/ijerph19052648

Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care

Gerd Ahlström, Helena Rosén, Eva I. Persson

Health-promoting Complex Interventions

Research output: Contribution to journal › Article › peer-review

Abstract

One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin’s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.

Original language	English
Article number	2648
Journal	International Journal of Environmental Research and Public Health
Volume	19
Issue number	5
DOIs	https://doi.org/10.3390/ijerph19052648
Publication status	Published - 2022 Mar 1

Bibliographical note

Funding Information:
This research was funded by the Swedish Research Council (no. VR 2014-2759), the V?rdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759).

Funding Information:
Funding: This research was funded by the Swedish Research Council (no. VR 2014-2759), the Vårdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759).

Publisher Copyright:
© 2022 by the authors. Licensee MDPI, Basel, Switzerland.

Subject classification (UKÄ)

Nursing

Free keywords

Abduction
Family members
Follow-up study
Meaning-focused coping
Next of kin
Palliative care
Qualitative method
Quality of life
Relative
Residential housing

Access to Document

10.3390/ijerph19052648Licence: CC BY

KUPA: Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes
Ahlström, G. (PI), Rasmussen, B. (Researcher), Behm, L. (Researcher), Persson, M. C. (Administrator), Åvik Persson, H. (Research student), Fürst, C. J. (Researcher), Wallerstedt, B. (Researcher), Sandgren, A. (Researcher), Benzein, E. (Researcher), Nilsen, P. (Researcher), Tall, A. M. (Research assistant), Bökberg, C. (Researcher), Rosén, H. (Researcher) & Alftberg, Å. (Researcher)
Greta and Johan Kock Foundation, Swedish Research Council, Vårdalstiftelsen
2015/01/01 → 2018/12/31
Project: Research

File

Cite this

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title = "Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care",

abstract = "One cornerstone of palliative care is improving the family{\textquoteright}s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin{\textquoteright}s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.",

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author = "Gerd Ahlstr{\"o}m and Helena Ros{\'e}n and Persson, {Eva I.}",

note = "Funding Information: This research was funded by the Swedish Research Council (no. VR 2014-2759), the V?rdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Funding Information: Funding: This research was funded by the Swedish Research Council (no. VR 2014-2759), the V{\aa}rdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Publisher Copyright: {\textcopyright} 2022 by the authors. Licensee MDPI, Basel, Switzerland.",

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Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care. / Ahlström, Gerd ; Rosén, Helena ; Persson, Eva I.
In: International Journal of Environmental Research and Public Health, Vol. 19, No. 5, 2648, 01.03.2022.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

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T2 - An Interview Study after an Educational Intervention concerning Palliative Care

AU - Ahlström, Gerd

AU - Rosén, Helena

AU - Persson, Eva I.

N1 - Funding Information: This research was funded by the Swedish Research Council (no. VR 2014-2759), the V?rdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Funding Information: Funding: This research was funded by the Swedish Research Council (no. VR 2014-2759), the Vårdal Foundation (no. 2014-0071) and the Medical Faculty, Lund University. The APC fee was funded by the Swedish Research Council (no. VR 2014-2759). Publisher Copyright: © 2022 by the authors. Licensee MDPI, Basel, Switzerland.

PY - 2022/3/1

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N2 - One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin’s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.

AB - One cornerstone of palliative care is improving the family’s quality of life (QoL). The principles of palliative care have not been sufficiently applied in nursing homes. The aim of this study was to investigate the experiences of QoL of next of kin of frail older persons in nursing homes after an educational intervention concerning palliative care. This qualitative interview study with 37 next of kin used an abductive design with deductive and inductive content analysis. The deductive analysis confirmed the three themes of QoL from the study before the implementation: (1) orientation to the new life-situation, (2) challenges in the relationship, and (3) the significance of the quality of care in the nursing home. The inductive analysis resulted in the sub-theme “Unspoken palliative care”. Being the next of kin of an older person living in a nursing home can be distressing despite round-the-clock care, so staff need to apply a more explicitly palliative care perspective. Future research needs to evaluate the influence of meaning-focused coping on next of kin’s QoL and integrate this knowledge in psychosocial interventions. Clinical Trial Database for Clinical Research: KUPA project NCT02708498.

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KW - Family members

KW - Follow-up study

KW - Meaning-focused coping

KW - Next of kin

KW - Palliative care

KW - Qualitative method

KW - Quality of life

KW - Relative

KW - Residential housing

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DO - 10.3390/ijerph19052648

M3 - Article

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AN - SCOPUS:85125074877

SN - 1661-7827

VL - 19

JO - International Journal of Environmental Research and Public Health

JF - International Journal of Environmental Research and Public Health

IS - 5

M1 - 2648

ER -

Quality of Life among Next of Kin of Frail Older People in Nursing Homes: An Interview Study after an Educational Intervention concerning Palliative Care

Abstract

Bibliographical note

Subject classification (UKÄ)

Free keywords

Access to Document

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Projects

KUPA: Implementation of Knowledge-Based Palliative Care for Frail Older Persons in Nursing Homes

Cite this