Regulating genetic engineering guided by human dignity, not genetic essentialism

Benjamin Gregg

    Research output: Contribution to journalArticlepeer-review

    Abstract

    How might a liberal democratic community best regulate human genetic engineering? Relevant debates widely deploy the usually undefined term “human dignity.” Its indeterminacy in meaning and use renders it useless as a guiding principle. In this article, I reject the human genome as somehow invested with a moral status, a position I call “genetic essentialism.” I explain why a critique of genetic essentialism is not a strawman and argue against defining human rights in terms of genetic essentialism. As an alternative, I propose dignity as the decisional autonomy of future persons, held in trust by the current generation. I show why a future person could be expected to have an interest in decisional autonomy and how popular deliberation, combined with expert medical and bioethical opinion, could generate principled agreement on how the decisional autonomy of future persons might be configured at the point of genetic engineering.
    Original languageEnglish
    Pages (from-to)60-75
    Number of pages16
    JournalPolitics and the Life Sciences
    Volume41
    Issue number1
    DOIs
    Publication statusPublished - 2021

    Subject classification (UKÄ)

    • Law

    Free keywords

    • Decisional autonomy
    • Dignity
    • Future persons
    • Human genetic engineering
    • Moral status of the human genome
    • Regulation
    • Social construction
    • Human rights

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