TY - JOUR
T1 - Spina bifida global learning collaborative
T2 - Educating the next generation of clinicians, researchers, and advocates
AU - Dosa, Nienke P
AU - Ahmed, Yakob S
AU - Alriksson-Schmidt, Ann
AU - Castillo, Heidi
AU - Contepomi, Silvana
AU - Locastro, Mary M
AU - Koning, Jan
AU - Koutsouros, George
AU - Kutwa, Elly
AU - Mahorta, Anjali
AU - MacFarland, Shade
AU - Öhrvall, Ann-Marie
AU - O'Neill, Patricia
AU - Overvelde, Anneloes
AU - Peny-Dahlstrand, Marie
AU - Shaw, Andrea
AU - Stockman, Jessica
AU - Tovar-Spinoza, Zulma
AU - Castillo, Jonathan
PY - 2023/12/26
Y1 - 2023/12/26
N2 - PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.RESULTS: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.CONCLUSION: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.
AB - PURPOSE: This project aimed to launch an international learning community to guide the development of a spina bifida (SB) curriculum for global health trainees.METHODS: Using a descriptive study design, a convenience sample of SB curricula were identified in 2022-23 by members of the Spina Bifida World Congress Outreach Committee and evaluated during a series of monthly Zoom calls to discuss SB education in a global health context. Participants included (1) leadership from the ReachAnother Foundation, (2) invited panelists from the Spina Bifida World Congress Global Health Symposium, and (3) global health students and preceptors. Education initiatives in Ethiopia, Sweden, Argentina, Ecuador, and the United States were evaluated vis-à-vis format and content.RESULTS: All of the education initiatives referenced the framework of the World Health Organization International Classification of Functioning, Disability and Health. Formats varied and included both virtual and interactive workshops, print materials, videos, and guides for small group discussion. Content addressed four domains: Folate Prevention, Neurosurgical Training, After Care, and Data Collection. A multidisciplinary approach, partnerships with families, and workforce pipeline training were identified as guiding themes for educating the next generation of SB researchers and clinicians in global health settings.CONCLUSION: The Spina Bifida Global Learning Collaborative is a transnational group of advocates, clinicians, and investigators whose mission is the advancement of SB-related global health education. Lessons learned from the collaborative are being leveraged to develop a global health curriculum for learners, which may improve services for individuals with SB around the globe.
KW - Spina bifida
KW - global health
KW - interprofessional education
U2 - 10.3233/PRM-230037
DO - 10.3233/PRM-230037
M3 - Article
C2 - 38143399
SN - 1874-5393
VL - 16
SP - 657
EP - 663
JO - Journal of Pediatric Rehabilitation Medicine
JF - Journal of Pediatric Rehabilitation Medicine
IS - 4
ER -
