The National Spina Bifida Program transition initiative: the people, the plan, and the process

Judy K. Thibadeau; Ann Alriksson-Schmidt; TA Zabel

doi:10.1016/j.pcl.2010.07.010

The National Spina Bifida Program transition initiative: the people, the plan, and the process

Judy K. Thibadeau, Ann Alriksson-Schmidt, TA Zabel

National Center on Birth Defects and Developmental Disability

Research output: Contribution to journal › Article

Abstract

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

Original language	English
Pages (from-to)	903-910
Number of pages	8
Journal	Pediatric Clinics of North America
Volume	57
Issue number	4
DOIs	https://doi.org/10.1016/j.pcl.2010.07.010
Publication status	Published - 2010
Externally published	Yes

Free keywords

Comprehensive Health Care/organization & administration
Continuity of Patient Care/organization & administration
Humans
Models, Organizational
Program Evaluation/methods
Quality of Health Care
Spinal Dysraphism/therapy
Systems Integration

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10.1016/j.pcl.2010.07.010

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abstract = "This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.",

keywords = "Comprehensive Health Care/organization & administration, Continuity of Patient Care/organization & administration, Humans, Models, Organizational, Program Evaluation/methods, Quality of Health Care, Spinal Dysraphism/therapy, Systems Integration",

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KW - Continuity of Patient Care/organization & administration

KW - Humans

KW - Models, Organizational

KW - Program Evaluation/methods

KW - Quality of Health Care

KW - Spinal Dysraphism/therapy

KW - Systems Integration

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ER -

The National Spina Bifida Program transition initiative: the people, the plan, and the process

Abstract

Free keywords

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