The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Erik Berntorp; Yesim Dargaud; Daniel P. Hart; Sébastien Lobet; Maria Elisa Mancuso; Roseline d'Oiron; David Perry; Debra Pollard; Marijke van den Berg; Jan Blatný; Hervé Chambost; Andrea S. Doria; Pål André Holme; Radoslaw Kaczmarek; Lorenzo Mantovani; Paul McLaughlin; Lochana Nanayakkara; Pia Petrini; Thomas Sannié; Edward Laane; Raquel Maia; Athina Dettoraki; Anna Farrell; Susan Halimeh; Sayma Raza; Stephanie Taylor

doi:10.1111/ejh.12828

The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Erik Berntorp, Yesim Dargaud, Daniel P. Hart, Sébastien Lobet, Maria Elisa Mancuso, Roseline d'Oiron, David Perry, Debra Pollard, Marijke van den Berg, Jan Blatný, Hervé Chambost, Andrea S. Doria, Pål André Holme, Radoslaw Kaczmarek, Lorenzo Mantovani, Paul McLaughlin, Lochana Nanayakkara, Pia Petrini, Thomas Sannié, Edward LaaneRaquel Maia, Athina Dettoraki, Anna Farrell, Susan Halimeh, Sayma Raza, Stephanie Taylor

Clinical Coagulation, Malmö

Research output: Contribution to journal › Article › peer-review

Abstract

The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

Original language	English
Pages (from-to)	1-15
Number of pages	15
Journal	European Journal of Haematology
Volume	98
Issue number	s85
DOIs	https://doi.org/10.1111/ejh.12828
Publication status	Published - 2017 Jan 1

Subject classification (UKÄ)

Hematology

Free keywords

clotting factor concentrates
genetics
haemophilia
laboratory assays
multidisciplinary
real-life data

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10.1111/ejh.12828

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Berntorp, E., Dargaud, Y., Hart, D. P., Lobet, S., Mancuso, M. E., d'Oiron, R., Perry, D., Pollard, D., van den Berg, M., Blatný, J., Chambost, H., Doria, A. S., Holme, P. A., Kaczmarek, R., Mantovani, L., McLaughlin, P., Nanayakkara, L., Petrini, P., Sannié, T., ... Taylor, S. (2017). The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany. European Journal of Haematology, 98(s85), 1-15. https://doi.org/10.1111/ejh.12828

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title = "The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany",

abstract = "The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.",

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year = "2017",

month = jan,

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doi = "10.1111/ejh.12828",

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Berntorp, E, Dargaud, Y, Hart, DP, Lobet, S, Mancuso, ME, d'Oiron, R, Perry, D, Pollard, D, van den Berg, M, Blatný, J, Chambost, H, Doria, AS, Holme, PA, Kaczmarek, R, Mantovani, L, McLaughlin, P, Nanayakkara, L, Petrini, P, Sannié, T, Laane, E, Maia, R, Dettoraki, A, Farrell, A, Halimeh, S, Raza, S & Taylor, S 2017, 'The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany', European Journal of Haematology, vol. 98, no. s85, pp. 1-15. https://doi.org/10.1111/ejh.12828

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T1 - The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

AU - Berntorp, Erik

AU - Dargaud, Yesim

AU - Hart, Daniel P.

AU - Lobet, Sébastien

AU - Mancuso, Maria Elisa

AU - d'Oiron, Roseline

AU - Perry, David

AU - Pollard, Debra

AU - van den Berg, Marijke

AU - Blatný, Jan

AU - Chambost, Hervé

AU - Doria, Andrea S.

AU - Holme, Pål André

AU - Kaczmarek, Radoslaw

AU - Mantovani, Lorenzo

AU - McLaughlin, Paul

AU - Nanayakkara, Lochana

AU - Petrini, Pia

AU - Sannié, Thomas

AU - Laane, Edward

AU - Maia, Raquel

AU - Dettoraki, Athina

AU - Farrell, Anna

AU - Halimeh, Susan

AU - Raza, Sayma

AU - Taylor, Stephanie

PY - 2017/1/1

Y1 - 2017/1/1

N2 - The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

AB - The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

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KW - genetics

KW - haemophilia

KW - laboratory assays

KW - multidisciplinary

KW - real-life data

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U2 - 10.1111/ejh.12828

DO - 10.1111/ejh.12828

M3 - Article

C2 - 28101938

AN - SCOPUS:85010408111

SN - 0902-4441

VL - 98

SP - 1

EP - 15

JO - European Journal of Haematology

JF - European Journal of Haematology

IS - s85

ER -

The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Abstract

Subject classification (UKÄ)

Free keywords

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