Toward developing consensus on family-centred care: An international descriptive study and discussion

Mohammad A. Al-Motlaq; Bernie Carter; Sarah Neill; Inger Kristensson Hallstrom; Mandie Foster; Imelda Coyne; Diana Arabiat; Philip Darbyshire; Veronica D. Feeg; Linda Shields

doi:10.1177/1367493518795341

Toward developing consensus on family-centred care: An international descriptive study and discussion

Mohammad A. Al-Motlaq, Bernie Carter, Sarah Neill, Inger Kristensson Hallstrom, Mandie Foster, Imelda Coyne, Diana Arabiat, Philip Darbyshire, Veronica D. Feeg, Linda Shields

Research output: Contribution to journal › Article › peer-review

Abstract

Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.

Original language	English
Pages (from-to)	458-467
Number of pages	10
Journal	Journal of Child Health Care
Volume	23
Issue number	3
Early online date	2018 Jan 1
DOIs	https://doi.org/10.1177/1367493518795341
Publication status	Published - 2019 Sept 1

Subject classification (UKÄ)

Health Care Service and Management, Health Policy and Services and Health Economy

Free keywords

Culture and cultural issues
Delphi technique
evidence-based practice
family-centred care

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1177/1367493518795341

Knowledge development and translation in implemented CCC
Kristensson Hallström, I. (Researcher), Schmiegelow, K. (Researcher), Castor, A. (Researcher), Nilsson, G. (Researcher), Tiberg, I. (Researcher), Hansson, H. (Researcher), Hansson, K. (Researcher), Magnusson, B. (Researcher), Steen Carlsson, K. (Researcher), Jerene, D. (Researcher), Johnsson, B. A. (Researcher), Nordmark, E. (Researcher), Lindgren, B. (Researcher) & Quaye, A. A. (Researcher)
Swedish Council for Higher Education, IPRO, Internationella programkontoret för utbildningsområdet, LU-fonder
2013/01/01 → 2021/12/31
Project: Research
LUC3 - Lund University Child Centered Care
Kristensson Hallström, I. (PI), Magnusson, B. (Researcher), Lindgren, B. (Researcher), Hansson, K. (Researcher), Hegaard, H. K. (Researcher), Tiberg, I. (Researcher), Landgren, K. (Researcher), Shargie, M. B. (Researcher), Carlsson, A. (Researcher), Kvist, L. (Researcher), Ekelin, M. (Researcher), Derwig, M. (Researcher), Björk, J. (Researcher), Steen Carlsson, K. (Researcher), Skoog, M. (Researcher), Lefevre, Å. (Researcher), Hansson, H. (Researcher), Persson, E.-K. (Researcher), Pålsson, P. (Researcher), Jerene, D. (Researcher), Idvall, M. (Researcher), Bergström, S. (Researcher), Johnsson, B. A. (Researcher), Dykes, A.-K. (Researcher), Erlandsson, L.-K. (Researcher), Edwinson Månsson, M. (Researcher), Berggren, V. (Researcher), Schmiegelow, K. (Researcher), Selander, B. (Researcher), Castor, A. (Researcher), Nilsson, G. (Researcher), Nordmark, E. (Researcher), Sjöström-Strand, A. (Researcher), Gårdling, J. (Researcher), Måstrup, R. (Researcher), Lundqvist, P. (Researcher), Castor, C. (Researcher), Sivberg, B. (Researcher), Quaye, A. A. (Research student) & Persson, M. C. (Administrator)
The Swedish Childhood Cancer Fund, Diabetesfonden - Stiftelsen Svenska Diabetesförbundets Forskningsfond, Ekhagastiftelsen, County Administrative Board, Östergötlands län, Swedish Research Council, Region Skåne, Crafoord Foundation, Fanny Ekdahls Stiftelse, Swedish Council for Working Life and Social Research (Forte)
2013/01/01 → 2021/12/31
Project: Research

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Cite this

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title = "Toward developing consensus on family-centred care: An international descriptive study and discussion",

abstract = "Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children{\textquoteright}s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.",

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AU - Al-Motlaq, Mohammad A.

AU - Carter, Bernie

AU - Neill, Sarah

AU - Hallstrom, Inger Kristensson

AU - Foster, Mandie

AU - Coyne, Imelda

AU - Arabiat, Diana

AU - Darbyshire, Philip

AU - Feeg, Veronica D.

AU - Shields, Linda

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AB - Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.

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KW - Delphi technique

KW - evidence-based practice

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Toward developing consensus on family-centred care: An international descriptive study and discussion

Abstract

Subject classification (UKÄ)

Free keywords

UN SDGs

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Projects

Knowledge development and translation in implemented CCC

LUC3 - Lund University Child Centered Care

Cite this