Area IV: eHealth as an aid for facilitating and supporting self-management in families with long-term childhood illness – development, evaluation and implementation in clinical practice.

Project: Research

Research areas and keywords

UKÄ subject classification

  • Nursing

Description

Intravenous infusion therapy to children and adolescents with long-term illness (LTI) at home is an increasingly important area as home care supports the children and their families’ quality of life. Having a child with LTI implies that parents manage several treatment and care tasks of their child at the hospital and at home. Studies have shown that parents may be anxious if they lack knowledge about medical and nursing tasks, and do not receive adequate support. This research is conducted University Hospital of Copenhagen Rigshospitalet, in which children and adolescents with LTI receive home infusion therapy by a portable pump with limited assistance from an outreaching team. The overall aim is to develop and test an eHealth intervention with the goal to ensure safety, continuity and quality of care of children with home infusion therapy and self-management of parents.
StatusActive
Effective start/end date2019/12/01 → …

Collaborative partners

  • Lund University (lead)
  • Juliane Marie Centre, Rigshospitalet (Project partner)

Participants