Area IV: eHealth as an aid for facilitating and supporting self-management in families with long-term childhood illness – development, evaluation and implementation in clinical practice.
Research areas and keywords
Intravenous infusion therapy to children and adolescents with long-term illness (LTI) at home is an increasingly important area as home care supports the children and their families’ quality of life. Having a child with LTI implies that parents manage several treatment and care tasks of their child at the hospital and at home. Studies have shown that parents may be anxious if they lack knowledge about medical and nursing tasks, and do not receive adequate support. This research is conducted University Hospital of Copenhagen Rigshospitalet, in which children and adolescents with LTI receive home infusion therapy by a portable pump with limited assistance from an outreaching team. The overall aim is to develop and test an eHealth intervention with the goal to ensure safety, continuity and quality of care of children with home infusion therapy and self-management of parents.
|Effective start/end date||2019/12/01 → …|
- Lund University (lead)
- Juliane Marie Centre, Rigshospitalet (Project partner)
Inger Kristensson Hallström, Magnus C Persson, Boris Magnusson, Björn A Johnsson, Pernilla Stenström, Annica Sjöström-Strand, Åsa Tornberg, Gudrun Kristjansdottir, Ólöf Kristjánsdóttir, Anna Welander Tärneberg, Robert Holmberg, Charlotte Castor, Helena Hansson, Matilda Wester Fleur & Emma Tiseus
Swedish Council for Working Life and Social Research (Forte)
2018/10/01 → …
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