Project: Research › Clinical research
This is a natural history study on the course of Huntington's disease, with focus on symptoms development and the impact of the disease in functions and ADL. The impact of the care takers is also assessed. The database generated will serve as a background data on progression in order to test novel disease modifying treatments. Registry is a pan- European registry stdy with > 1000 cases being followed on a regular basis. In 2018 it will merge with a global registry with similar set-up, entitled EnRoll.
|Effective start/end date||2012/01/01 → …|