A controlled trial of an educational programme for people with Parkinson's disease

Research output: Contribution to journalArticle


Aims and objective. To evaluate patient- reported health outcomes of a multidisciplinary group educational programme for people with Parkinson's disease ( PD), delivered as part of routine clinical practice. Background. Studies suggest that educational programmes for people with PD have potential to improve patients' perceived health and well- being. However, controlled trials of multidisciplinary group educational programmes are lacking. Design. Naturalistic non- randomized controlled trial. Methods. Following ethical approval and informed consent, 48 people with PD ( 58% men; mean age, 69 center dot 3) received the intervention and 48 ( 52% men; mean age, 72) were allocated to a delayed intervention control group. The intervention was a six- week ( two hours per week) multidisciplinary group educational programme. Patient-reported health outcomes were assessed by the 12-item short-form health survey ( SF-12) at baseline and one month postintervention. Results. Changes in SF-12 scores at follow-up did not differ between the groups and there were no within-group differences over time. Daily dopaminergic medication increased in the control group but not in the intervention group. Conclusions. Slightly, but significantly, increased drug requirement in the control group may in part have masked deterioration in perceived health. However, failure to demonstrate improved patient- reported health may relate to the intervention design, response shift ( i. e. change in how people perceive their health), and/ or quality and choice of outcome measures. Further studies that take these aspects into consideration are needed to determine the potential for patient education interventions in PD.


  • Susanne Lindskov
  • Albert Westergren
  • Peter Hagell
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Nursing


  • nursing, neurology, multidisciplinary, assessment, clinical trial, patient teaching
Original languageEnglish
Pages (from-to)368-376
JournalJournal of Clinical Nursing
Issue number11C
Publication statusPublished - 2007
Publication categoryResearch

Bibliographic note

The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Caring Sciences (Closed 2012) (016514020)