Adolescents with anorectal malfromation: physical outcome, sexual health and quality of life

Research output: Contribution to journalArticle


Background: The necessity of referral of adolescents with anorectal malformation (ARM) from pediatric units to adult care is unclear. The issue requires knowledge about the adolescents´ health.
Objective: To examine the physical outcome, sexual health and quality of life (QoL) in adolescents with ARM.
Material and method: At medical counseling twenty-four adolescents with ARM, 15-21 years of age, answered questionnaires about physical outcome according to the Krickenbeck and QoL according to SF 36 and gastrointestinal quality of life (Giqli). Matched control groups were used. Fifteen adolescents participated in deep interviews about sexual health and body imaging.
Results: Fecal soiling, constipation and gas incontinence were much higher for ARM patients compared with the controls (p<0.05). QoL regarding large bowel function was lower for both genders compared with the controls (p<0.05). Females scored lower in physically related QoL (p<0.05). Social and sexual adaption was transparent in the deep interviews.
Conclusion: Adolescents with ARM have considerable intestinal symptoms, influencing QoL and requiring adaption in intimate situations. A referral to adult care seems important and a continuous cooperation between the pediatric surgeon and adult care is suggested.


Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Pediatrics
  • Public Health, Global Health, Social Medicine and Epidemiology


  • anorectal malformations, adolescence, fecal incontinence, quality of life, sexual health
Original languageEnglish
Pages (from-to)49-59
JournalInternational Journal of Adolescent Medicine and Health
Issue number1
Publication statusPublished - 2014
Publication categoryResearch

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