Breaking the patientification process - through co-creation of care, using old arctic survival knowledge

Research output: Contribution to journalArticle


Purpose: Cancer research and connected innovation processes often lack a major component; patient participation. We revisit three studies (a-c) in order to explore how Momentary contentment theory may be used to improve patient participation and psychosocial health.

Method: We revisited data from the initial (a) classic grounded theory study on Momentary contentment, based on four years of observation and 14 interviews. It explains a way of dealing with life close to death and morbidity. In the imminence of danger the studied culture resembles the context of cancer patients. The two following studies used focus group interviews with (b) 19 cancer patients and (c) 17 relatives of cancer patients in southern Sweden.

Results: We suggest a process where cancer patients are taught to be submissive and that the support they receive from health providers may be counterproductive to contentment; a patientification process. We present alternative ways for people to handle issues such as hope, waiting, knowledge gaps and healthcare navigation while living with cancer. We introduce an alternative to patientification and passive patients where active patients create their own safety and truly participates in their care.
Conclusions: We propose clinical studies to introduce such a shift from patentification to co-creation of care.


External organisations
  • Linnaeus University
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Health Care Service and Management, Health Policy and Services and Health Economy
  • Other Engineering and Technologies
  • Social Work


Translated title of the contributionBryta patientifieringsprocessen - genom samskapande av vård, med hjälp av gammal arktisk överlevnadskunskap
Original languageEnglish
Article number1926052
Number of pages12
JournalInternational Journal of Qualitative Studies on Health and Well-being
Issue number1
Publication statusPublished - 2021 May 11
Publication categoryResearch