Breaking the patientification process - through co-creation of care, using old arctic survival knowledge

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T1 - Breaking the patientification process - through co-creation of care, using old arctic survival knowledge

AU - Sandén, Ulrika

AU - Harrysson, Lars

AU - Thulesius, Hans

AU - Nilsson, Fredrik

PY - 2021/5/11

Y1 - 2021/5/11

N2 - Purpose: Cancer research and connected innovation processes often lack a major component; patient participation. We revisit three studies (a-c) in order to explore how Momentary contentment theory may be used to improve patient participation and psychosocial health.Method: We revisited data from the initial (a) classic grounded theory study on Momentary contentment, based on four years of observation and 14 interviews. It explains a way of dealing with life close to death and morbidity. In the imminence of danger the studied culture resembles the context of cancer patients. The two following studies used focus group interviews with (b) 19 cancer patients and (c) 17 relatives of cancer patients in southern Sweden.Results: We suggest a process where cancer patients are taught to be submissive and that the support they receive from health providers may be counterproductive to contentment; a patientification process. We present alternative ways for people to handle issues such as hope, waiting, knowledge gaps and healthcare navigation while living with cancer. We introduce an alternative to patientification and passive patients where active patients create their own safety and truly participates in their care. Conclusions: We propose clinical studies to introduce such a shift from patentification to co-creation of care.

AB - Purpose: Cancer research and connected innovation processes often lack a major component; patient participation. We revisit three studies (a-c) in order to explore how Momentary contentment theory may be used to improve patient participation and psychosocial health.Method: We revisited data from the initial (a) classic grounded theory study on Momentary contentment, based on four years of observation and 14 interviews. It explains a way of dealing with life close to death and morbidity. In the imminence of danger the studied culture resembles the context of cancer patients. The two following studies used focus group interviews with (b) 19 cancer patients and (c) 17 relatives of cancer patients in southern Sweden.Results: We suggest a process where cancer patients are taught to be submissive and that the support they receive from health providers may be counterproductive to contentment; a patientification process. We present alternative ways for people to handle issues such as hope, waiting, knowledge gaps and healthcare navigation while living with cancer. We introduce an alternative to patientification and passive patients where active patients create their own safety and truly participates in their care. Conclusions: We propose clinical studies to introduce such a shift from patentification to co-creation of care.

KW - cancer

KW - samskapande

KW - väntan

KW - rehabilitering

KW - patientperspektiv

KW - innovation

KW - identitet

KW - hopp

KW - hälsa

KW - design thinking

U2 - 10.1080/17482631.2021.1926052

DO - 10.1080/17482631.2021.1926052

M3 - Article

C2 - 33974518

VL - 16

JO - International Journal of Qualitative Studies on Health and Well-being

JF - International Journal of Qualitative Studies on Health and Well-being

SN - 1748-2631

IS - 1

M1 - 1926052

ER -