Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)
Research output: Contribution to journal › Article
Abstract
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.
Details
Authors | |
---|---|
Organisations | |
Research areas and keywords | Subject classification (UKÄ) – MANDATORY
Keywords
|
Original language | English |
---|---|
Pages (from-to) | 688-691 |
Journal | Pediatric Blood & Cancer |
Volume | 47 |
Issue number | Suppl.5 |
Publication status | Published - 2006 |
Publication category | Research |
Peer-reviewed | Yes |