Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

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Bibtex

@article{6ddc30cd232d4a9a945df3106e010149,
title = "Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)",
abstract = "Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.",
keywords = "children, ITP, quality of life",
author = "{von Mackensen}, S. and Cecilia Nilsson and M. Jankovic and N. Mirra and E. D'Angelo and A. Borkhardt and Rolf Ljung",
year = "2006",
doi = "10.1002/pbc.20977",
language = "English",
volume = "47",
pages = "688--691",
journal = "Pediatric Blood & Cancer",
issn = "1545-5017",
publisher = "John Wiley and Sons",
number = "Suppl.5",

}