Diet plays a central role in parental self-treatment of children with Hirschsprung’s disease: a qualitative study

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T1 - Diet plays a central role in parental self-treatment of children with Hirschsprung’s disease

T2 - a qualitative study

AU - Telborn, Lovisa

AU - Tofft, Louise

AU - Kristensson Hallström, Inger

AU - Waldenvik, Frida

AU - Axelsson, Irene

AU - Stenström, Pernilla

PY - 2021/5/25

Y1 - 2021/5/25

N2 - AimHirschsprung's disease is a congenital disorder requiring surgery. Most children operated on for Hirschsprung's disease experience postoperative bowel dysmotility. Although various food is known to influence bowel motility, evidence of diet's role and dietary guidelines in treatment of bowel dysfunction in Hirschsprung's disease is lacking. The aim was to explore parental experiences of dietary effects on bowel function in children with Hirschsprung's disease.MethodsA qualitative study including three focus groups with ten parents of children with Hirschsprung's disease at a national Hirschsprung's disease centre. Data were analysed through content analysis.ResultsParents emphasised diet as a strong influencer on their child's bowel function in Hirschsprung's disease. They expressed great concerns about their responsibility and strived hard to explore and adjust dietary habits to control the child's bowel function. Families’ daily and social lives were influenced by the child's diet and bowel function. The parents desired dietary support and guidelines to improve their confidence in self-treatment of Hirschsprung's disease.ConclusionDietary habits play a key role in parental self-treatment of bowel function in their children with Hirschsprung's disease. Dietary guidelines for patients with Hirschsprung's disease are anticipated.

AB - AimHirschsprung's disease is a congenital disorder requiring surgery. Most children operated on for Hirschsprung's disease experience postoperative bowel dysmotility. Although various food is known to influence bowel motility, evidence of diet's role and dietary guidelines in treatment of bowel dysfunction in Hirschsprung's disease is lacking. The aim was to explore parental experiences of dietary effects on bowel function in children with Hirschsprung's disease.MethodsA qualitative study including three focus groups with ten parents of children with Hirschsprung's disease at a national Hirschsprung's disease centre. Data were analysed through content analysis.ResultsParents emphasised diet as a strong influencer on their child's bowel function in Hirschsprung's disease. They expressed great concerns about their responsibility and strived hard to explore and adjust dietary habits to control the child's bowel function. Families’ daily and social lives were influenced by the child's diet and bowel function. The parents desired dietary support and guidelines to improve their confidence in self-treatment of Hirschsprung's disease.ConclusionDietary habits play a key role in parental self-treatment of bowel function in their children with Hirschsprung's disease. Dietary guidelines for patients with Hirschsprung's disease are anticipated.

KW - bowel habit

KW - diet

KW - hirschsprungs disease

KW - interview

KW - parental perspective

U2 - 10.1111/apa.15952

DO - 10.1111/apa.15952

M3 - Article

C2 - 34032316

JO - Acta Pædiatrica

JF - Acta Pædiatrica

SN - 1651-2227

ER -