Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective.

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Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective. / Nygårdh, Annette; Wikby, Kerstin; Malm, Dan; Ahlström, Gerd.

In: BMC Nursing, Vol. 10, 21, 2011.

Research output: Contribution to journalArticle

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TY - JOUR

T1 - Empowerment in outpatient care for patients with chronic kidney disease - from the family member's perspective.

AU - Nygårdh, Annette

AU - Wikby, Kerstin

AU - Malm, Dan

AU - Ahlström, Gerd

N1 - The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: The Vårdal Institute (016540000)

PY - 2011

Y1 - 2011

N2 - BACKGROUND: Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members. METHODS: An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective. RESULTS: Having strength to assume the responsibility was the main theme that emerged from the following five sub-themes: Being an involved participant, Having confirming encounters, Trusting in health-care staff, Comprehending through knowledge, and Feeling left out. Four of these five sub-themes were positive. The fifth subtheme illuminated negative experience, indicating the absence of empowerment. CONCLUSIONS: Family members' experience of empowerment is dependent on their ability to assume the responsibility for a relative with chronic kidney disease when needed. The findings emphasise the need for a family perspective and the significance of a supportive environment for family members of persons in outpatient care.

AB - BACKGROUND: Family members of persons with pre-dialysis chronic kidney disease may experience feelings of vulnerability and insecurity as the disease follows its course. Against this background, the aim of the present study was to explore empowerment in outpatient care as experienced by these family members. METHODS: An inductive approach for qualitative data analysis was chosen. The study sample comprised 12 family members of pre-dialysis patients at an outpatient kidney clinic. Two interviews with each family member were subjected to content analysis to gain an understanding of empowerment from the family members' perspective. RESULTS: Having strength to assume the responsibility was the main theme that emerged from the following five sub-themes: Being an involved participant, Having confirming encounters, Trusting in health-care staff, Comprehending through knowledge, and Feeling left out. Four of these five sub-themes were positive. The fifth subtheme illuminated negative experience, indicating the absence of empowerment. CONCLUSIONS: Family members' experience of empowerment is dependent on their ability to assume the responsibility for a relative with chronic kidney disease when needed. The findings emphasise the need for a family perspective and the significance of a supportive environment for family members of persons in outpatient care.

U2 - 10.1186/1472-6955-10-21

DO - 10.1186/1472-6955-10-21

M3 - Article

VL - 10

JO - BMC Nursing

JF - BMC Nursing

SN - 1472-6955

M1 - 21

ER -