Health-related quality of life in children with Type 1 diabetes: an RCT of hospital-based care and hospital-based home care at diagnosis
Research output: Contribution to journal › Article
Method: The trial took place at a university hospital in Sweden and had a randomised controlled design evaluating the hospital-based care and HBHC, referring to specialist care in a home-based setting. Children aged 5–16 and their parents answered the PedsQLTM 3.0 Diabetes Module, 12 months and 24 months after the onset of the illness.
Results: The results showed no difference regarding the children’s diabetes-specific HRQOL. However, 12 months from diagnosis, the children and parents who received HBHC experienced more worry than those who had received hospital-based care at diagnosis (p = .012). Irrespective of the form of care, children reported more discomfort of the disease than their parents reported that the children would have (p = .017).
Conclusion: Overall, the result indicates that both hospital-based care and HBHC provide equivalent outcomes in terms of the children’s diabetes-specific HRQOL. However, a more home-based model of care might put more strain on some families. Those families need to be identified and the routines should be flexible in order to meet each family’s need.
|Research areas and keywords||
Subject classification (UKÄ) – MANDATORY
|Journal||International Diabetes Nursing|
|Publication status||Published - 2017|
Inger Kristensson Hallström, Markus Idvall, Björn A Johnsson, Kjeld Schmiegelow, Bo Selander, Anders Castor, Irén Tiberg, Helena Hansson, Boris Magnusson, Katarina Steen Carlsson, Annica Sjöström-Strand, Mulatu Biru Shargie, Jenny Gårdling, Ragnhild Måstrup, Charlotte Castor & Pia Lundqvist
Stiftelsen Ragnhild och Einar Lundströms Minne
2013/01/01 → …
Inger Kristensson Hallström, Boris Magnusson, Björn Lindgren, Kristofer Hansson, Hanne Kristine Hegaard, Irén Tiberg, Kajsa Landgren, Mulatu Biru Shargie, Annelie Carlsson, Linda Kvist, Maria Ekelin, Mariette Derwig, Jonas Björk, Katarina Steen Carlsson, Malin Skoog, Åsa Lefèvre, Helena Hansson, Eva-Kristina Persson, Petra Pålsson, Degu Jerene, Markus Idvall, Staffan Bergström, Björn A Johnsson, Anna-Karin Dykes, Lena-Karin Erlandsson, Marie Edwinson Månsson, Vanja Berggren, Kjeld Schmiegelow, Bo Selander, Anders Castor, Gabriella Nilsson, Eva Nordmark, Annica Sjöström-Strand, Jenny Gårdling, Ragnhild Måstrup, Pia Lundqvist, Charlotte Castor, Bengt Sivberg, Angela Afua Quaye & Magnus C Persson
Swedish Council for Working Life and Social Research (Forte), Fanny Ekdahls Stiftelse, Crafoord Foundation, Ekhagastiftelsen, Barncancerfonden, County Administrative Board, Östergötlands län, Diabetesfonden - Stiftelsen Svenska Diabetesförbundets Forskningsfond, Region Skåne, Swedish Research Council
2013/01/01 → …