How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia

Research output: Contribution to journalArticle

Standard

How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia. / Kjeken, Ingvild; Ziegler, Connie; Skrolsvik, Jack; Bagge, Jan; Smedslund, Geir; Tovik, Anne; Dagfinrud, Hanne S.; Petersson, Ingemar; Hagen, Kare Birger.

In: Physical Therapy, Vol. 90, No. 3, 2010, p. 450-460.

Research output: Contribution to journalArticle

Harvard

Kjeken, I, Ziegler, C, Skrolsvik, J, Bagge, J, Smedslund, G, Tovik, A, Dagfinrud, HS, Petersson, I & Hagen, KB 2010, 'How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia', Physical Therapy, vol. 90, no. 3, pp. 450-460. https://doi.org/10.2522/ptj.20080381

APA

Kjeken, I., Ziegler, C., Skrolsvik, J., Bagge, J., Smedslund, G., Tovik, A., Dagfinrud, H. S., Petersson, I., & Hagen, K. B. (2010). How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia. Physical Therapy, 90(3), 450-460. https://doi.org/10.2522/ptj.20080381

CBE

MLA

Vancouver

Author

Kjeken, Ingvild ; Ziegler, Connie ; Skrolsvik, Jack ; Bagge, Jan ; Smedslund, Geir ; Tovik, Anne ; Dagfinrud, Hanne S. ; Petersson, Ingemar ; Hagen, Kare Birger. / How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia. In: Physical Therapy. 2010 ; Vol. 90, No. 3. pp. 450-460.

RIS

TY - JOUR

T1 - How to Develop Patient-Centered Research: Some Perspectives Based on Surveys Among People With Rheumatic Diseases in Scandinavia

AU - Kjeken, Ingvild

AU - Ziegler, Connie

AU - Skrolsvik, Jack

AU - Bagge, Jan

AU - Smedslund, Geir

AU - Tovik, Anne

AU - Dagfinrud, Hanne S.

AU - Petersson, Ingemar

AU - Hagen, Kare Birger

PY - 2010

Y1 - 2010

N2 - Patient-centered research addresses the research agenda of patients and captures aspects of health and functioning that they consider important. Yet, those who live with a disease or condition have limited influence when it comes to setting the research agenda, and we know little about how they experience being participants in research studies. Furthermore, knowledge is limited concerning factors enhancing or hindering patients' participation in trials and the format that people with rheumatic diseases and their families prefer for dissemination of the results from clinical research. This perspective article describes the research priorities of people with rheumatic diseases in Scandinavia, their experiences and attitudes concerning participation in research projects, and which format for research information they prefer. Based on results from 3 surveys organized by the Scandinavian Rheumatism Associations and on related research literature, the possible implications for future research also are discussed.

AB - Patient-centered research addresses the research agenda of patients and captures aspects of health and functioning that they consider important. Yet, those who live with a disease or condition have limited influence when it comes to setting the research agenda, and we know little about how they experience being participants in research studies. Furthermore, knowledge is limited concerning factors enhancing or hindering patients' participation in trials and the format that people with rheumatic diseases and their families prefer for dissemination of the results from clinical research. This perspective article describes the research priorities of people with rheumatic diseases in Scandinavia, their experiences and attitudes concerning participation in research projects, and which format for research information they prefer. Based on results from 3 surveys organized by the Scandinavian Rheumatism Associations and on related research literature, the possible implications for future research also are discussed.

U2 - 10.2522/ptj.20080381

DO - 10.2522/ptj.20080381

M3 - Article

C2 - 20110341

VL - 90

SP - 450

EP - 460

JO - Physical Therapy

JF - Physical Therapy

SN - 0031-9023

IS - 3

ER -