Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.

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Abstract

Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children <18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.

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Subject classification (UKÄ) – MANDATORY

  • Pediatrics
Original languageEnglish
JournalPediatric Blood & Cancer
Early online date2013 Nov 26
Publication statusPublished - 2013
Publication categoryResearch
Peer-reviewedYes