Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

Research output: Contribution to journalArticle

Abstract

Purpose The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

Details

Authors
Organisations
External organisations
  • Jönköping University
  • University of Skövde
  • University of Borås
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Nursing
  • Cancer and Oncology

Keywords

  • Death, Lived experience, Nursing, Paediatric cancer, Palliative care, Parents
Original languageEnglish
Pages (from-to)40-45
Number of pages6
JournalEuropean Journal of Oncology Nursing
Volume25
Publication statusPublished - 2016 Dec 1
Publication categoryResearch
Peer-reviewedYes

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