Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

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Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer. / Björk, Maria; Sundler, Annelie J.; Hallström, Inger; Hammarlund, Kina.

In: European Journal of Oncology Nursing, Vol. 25, 01.12.2016, p. 40-45.

Research output: Contribution to journalArticle

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TY - JOUR

T1 - Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer

AU - Björk, Maria

AU - Sundler, Annelie J.

AU - Hallström, Inger

AU - Hammarlund, Kina

PY - 2016/12/1

Y1 - 2016/12/1

N2 - Purpose The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

AB - Purpose The aim of this study was to illuminate parents' lived experiences of losing a child to cancer. Method Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach. Results One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life. Conclusion There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

KW - Death

KW - Lived experience

KW - Nursing

KW - Paediatric cancer

KW - Palliative care

KW - Parents

UR - http://www.scopus.com/inward/record.url?scp=84988644276&partnerID=8YFLogxK

U2 - 10.1016/j.ejon.2016.08.007

DO - 10.1016/j.ejon.2016.08.007

M3 - Article

VL - 25

SP - 40

EP - 45

JO - Journal of Cancer Nursing

JF - Journal of Cancer Nursing

SN - 1462-3889

ER -