Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy

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Bibtex

@article{0949b12f5fb84542bbfc9673be706fa3,
title = "Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy",
abstract = "Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.",
keywords = "brain tumour, interviews, nursing, proton beam therapy, psychological adaptation, qualitative method, radiotherapy, social context, social support, staying away from home",
author = "M{\"o}llerberg, {Marie Louise} and Ulrica Langeg{\aa}rd and Emma Ohlsson-Nevo and Per Fransson and Birgitta Johansson and Karin Ahlberg and Katarina Sj{\"o}vall",
year = "2020",
month = jul,
doi = "10.1002/nop2.490",
language = "English",
volume = "7",
pages = "1157--1163",
journal = "Nursing Open",
issn = "2054-1058",
publisher = "Wiley-Blackwell",
number = "4",

}