Mothers’ experiences of their work as healthcare assistants for their chronic disabled child

Research output: Contribution to journalArticle


Background: To the best of our knowledge, no research of the work situation of full-time, paid, parental HC assistants has been done. Aim: To examine how parents experienced their work as HC assistants for their chronic disabled child. Methods: Semi-structured interviews based on the Work Environment Impact Scale (WEIS-S) were done with nine mothers who had a child aged 8-17 years old with a cognitive or/and physical chronic disability. Content analysis was used with the Model Of Human Occupation as a framework. Results: The studied mothers always needed to be stand-by for their child, and they highlighted physical and psychological health problems caused by their work situation. There were several difficulties working in different environments because of the child’s need of technical devices. Further they described the support from their employers as important and in general the participants perceived a lack of understanding about their work situation in the society. Conclusion: The mothers in the present study had unclear job descriptions, they often worked more than full-time, and had low occupational balance. Significance: Occupational therapists could improve the HC assistants’ work place focusing on the physical and psycho-social work environment as well as on their occupational balance.


External organisations
  • Region Skåne
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Occupational Therapy


  • Care givers, home care agencies, home care services, occupational imbalance, work environment
Original languageEnglish
Pages (from-to)121-134
Number of pages14
JournalScandinavian Journal of Occupational Therapy
Issue number2
Early online date2018 Jun 29
Publication statusPublished - 2019
Publication categoryResearch