Next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: a phenomenographic study

Research output: Contribution to journalArticle

Abstract

BACKGROUND: Being involved in the care of a loved one is a desire of many next of kin. However, according to several studies of the perceptions of nursing home staff, the involvement of next of kin is not an obvious part of care. To be able to involve next of kin in care at nursing homes, the perceptions of what participation means are an important piece of knowledge. The aim of this study was therefore to describe variations in next of kin's perceptions of the meaning of participation in the care of older persons living in nursing homes.

METHODS: Eighteen next of kin of older persons living in ten nursing homes in Sweden were recruited for interviews. The study design was based on a phenomenographic approach, focusing on the qualitatively different ways in which a person perceives, experiences or conceptualises a phenomenon or certain aspect of reality.

RESULTS: Five categories emerged from analysis of the interviews, representing the next of kin's perceptions of the meaning of participation in the care of older persons in nursing homes: be present; communicate; monitor; do practical tasks; and to represent. The next of kin expressed meanings that belonged to more than one category, and the categories were interdependent.

CONCLUSIONS: Our results indicate that there are several meanings of next of kin's perceptions of participation at nursing homes. Nursing home staff's knowledge of these perceptions is important to enable next of kin to participate according to their own preferences.

Details

Authors
  • Kajsa Ekström
  • Sanna Spelmans
  • Gerd Ahlström
  • Per Nilsen
  • Åsa Alftberg
  • Birgitta Wallerstedt
  • Lina Behm
Organisations
External organisations
  • Linköping University
  • Malmö University
  • Linnaeus University
  • Lund University
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Nursing
Original languageEnglish
Number of pages9
JournalScandinavian Journal of Caring Sciences
Publication statusE-pub ahead of print - 2019 Jan 3
Publication categoryResearch
Peer-reviewedYes

Related projects

Gerd Ahlström, Birgit Rasmussen, Lina Behm, Magnus C Persson, Helene Åvik Persson, Carl Johan Fürst, Birgitta Wallerstedt, Anna Sandgren, Eva Benzein, Per Nilsen, Anne Molina Tall, Christina Bökberg, Helena Rosén & Åsa Alftberg

Greta & Johan Kocks stiftelser, Vårdalstiftelsen, Swedish Research Council

2015/01/012018/12/31

Project: Research

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