Parental and health care professional views on psychosocial and educational outcomes in patients with cleft lip and/or cleft palate

Research output: Contribution to journalArticle

Abstract

Background: Earlier research has investigated psychosocial and educational issues in populations of patients with cleft identifying several areas of concern. The objective of this study was to investigate current beliefs and knowledge about psychosocial and educational issues in parents and health care professionals (HCP) of children with cleft lip and/or palate (CL/P). Method: Parents were interviewed concerning the view of society on people with visible differences, their child’s social life, educational progress, and information regarding psychosocial care. Interviews with HCPs concerned characteristics related with educational achievement, behavior, and social relationships. Fifteen parents of children 9 to 13 years of age with CL/P and 10 HCPs and were interviewed. Data from interviews was analyzed with thematic analysis. Results: Eight children were reported to have emotional issues related to their cleft. Eleven parents, however, did not perceive that their child was treated differently in society. HCPs expressed concerns regarding for example coping with being different, low self-esteem, shyness, disadvantage on first impression, and acceptance of themselves. A majority of the HCPs did not think patient cognition and behavioral or physical development were specifically affected. Conclusions: The results revealed that parent experience and views were diverse—from no specific problems related to the cleft, to both emotional and educational issues. The beliefs and level of knowledge in HCPs also varied. All HCPs, however, wished for more information and training regarding psychosocial issues. Level of Evidence: Level VI, Diagnostic/Qualitative study.

Details

Authors
Organisations
External organisations
  • Skåne University Hospital
  • University of the West of England
  • Kristianstad University
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Public Health, Global Health, Social Medicine and Epidemiology

Keywords

  • Cleft lip and/or cleft palate, Educational outcomes, Interview, Psychosocial outcomes, Qualitative results
Original languageEnglish
JournalEuropean Journal of Plastic Surgery
Publication statusE-pub ahead of print - 2019 Apr 19
Publication categoryResearch
Peer-reviewedYes