Parents' Lived Experiences During Their Children's Radiotherapy

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Parents' Lived Experiences During Their Children's Radiotherapy. / Gårdling, Jenny; Törnqvist, Erna; Edwinson Månsson, Marie; Hallström, Inger.

In: Journal of Pediatric Oncology Nursing, Vol. 34, No. 2, 2017, p. 140-147.

Research output: Contribution to journalArticle

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TY - JOUR

T1 - Parents' Lived Experiences During Their Children's Radiotherapy

AU - Gårdling, Jenny

AU - Törnqvist, Erna

AU - Edwinson Månsson, Marie

AU - Hallström, Inger

N1 - © 2016 by Association of Pediatric Hematology/Oncology Nurses.

PY - 2017

Y1 - 2017

N2 - BACKGROUND: The aim of radiotherapy is to provide a cure and/or symptomatic relief for children with cancer. Treatment is delivered on a daily basis, 5 days per week, over the course of 5 to 35 days. Many parents find that leaving their children alone during treatment and exposing them to radiation is a challenging experience. To gain an understanding of parents' lived experiences, 10 parents were asked to keep a diary while their children underwent radiotherapy.METHODS: A descriptive inductive design with a hermeneutic-phenomenological approach was chosen to analyze the diaries. The parents were asked to write down their lived experiences while their children underwent radiotherapy. Daily notes, both short and long, were desirable.FINDINGS: The parents described radiotherapy as a balancing act involving a constant attempt to maintain a balance between coercing and protecting their children in order to improve their children's chances of survival. Meanwhile, the parents themselves were struggling with their own despair and feelings of powerlessness. While protecting their children, they experienced a sense of hope and felt that they had gained control.CONCLUSION: Parents' daily written reflections are important for clinical practice and provide vital knowledge. Parents need support when focusing on coercing and protecting their children and help with information and routines that enable them gain control.

AB - BACKGROUND: The aim of radiotherapy is to provide a cure and/or symptomatic relief for children with cancer. Treatment is delivered on a daily basis, 5 days per week, over the course of 5 to 35 days. Many parents find that leaving their children alone during treatment and exposing them to radiation is a challenging experience. To gain an understanding of parents' lived experiences, 10 parents were asked to keep a diary while their children underwent radiotherapy.METHODS: A descriptive inductive design with a hermeneutic-phenomenological approach was chosen to analyze the diaries. The parents were asked to write down their lived experiences while their children underwent radiotherapy. Daily notes, both short and long, were desirable.FINDINGS: The parents described radiotherapy as a balancing act involving a constant attempt to maintain a balance between coercing and protecting their children in order to improve their children's chances of survival. Meanwhile, the parents themselves were struggling with their own despair and feelings of powerlessness. While protecting their children, they experienced a sense of hope and felt that they had gained control.CONCLUSION: Parents' daily written reflections are important for clinical practice and provide vital knowledge. Parents need support when focusing on coercing and protecting their children and help with information and routines that enable them gain control.

U2 - 10.1177/1043454216646540

DO - 10.1177/1043454216646540

M3 - Article

VL - 34

SP - 140

EP - 147

JO - Journal of Pediatric Oncology Nursing

T2 - Journal of Pediatric Oncology Nursing

JF - Journal of Pediatric Oncology Nursing

SN - 1043-4542

IS - 2

ER -