Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities

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Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities. / Pettersson, Katina; Bjerke, Kari Marte; Jahnsen, Reidun; Öhrvik, John; Rodby-Bousquet, Elisabet.

In: Disability and Rehabilitation, Vol. 41, No. 2, 2019, p. 212-218.

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TY - JOUR

T1 - Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities

AU - Pettersson, Katina

AU - Bjerke, Kari Marte

AU - Jahnsen, Reidun

AU - Öhrvik, John

AU - Rodby-Bousquet, Elisabet

PY - 2019

Y1 - 2019

N2 - Purpose: To examine test–retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I–V for children born 2000–2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test–retest reliability (n = 64), and Cronbach’s alpha was calculated as an indicator of internal consistency. Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test–retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72–0.92 for the domain scores. Cronbach’s alpha was 0.96 for the total score and 0.83–0.96 for the domain scores. Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.Implications for rehabilitationValid and reliable outcome measures are needed to evaluate whether follow-up programs enhance health related quality of life in different countries.The Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) was evaluated for known-groups validity and test–retest reliability.The Scandinavian version of the CPCHILD is a sound and valid measurement for evaluation and comparison of health related quality of life of children with cerebral palsy in different countries.

AB - Purpose: To examine test–retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I–V for children born 2000–2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test–retest reliability (n = 64), and Cronbach’s alpha was calculated as an indicator of internal consistency. Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test–retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72–0.92 for the domain scores. Cronbach’s alpha was 0.96 for the total score and 0.83–0.96 for the domain scores. Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.Implications for rehabilitationValid and reliable outcome measures are needed to evaluate whether follow-up programs enhance health related quality of life in different countries.The Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) was evaluated for known-groups validity and test–retest reliability.The Scandinavian version of the CPCHILD is a sound and valid measurement for evaluation and comparison of health related quality of life of children with cerebral palsy in different countries.

KW - Cerebral palsy

KW - CPCHILD

KW - GMFCS

KW - quality of life

KW - reliability

KW - validity

UR - http://www.scopus.com/inward/record.url?scp=85029679574&partnerID=8YFLogxK

U2 - 10.1080/09638288.2017.1378930

DO - 10.1080/09638288.2017.1378930

M3 - Article

VL - 41

SP - 212

EP - 218

JO - Disability and Rehabilitation

T2 - Disability and Rehabilitation

JF - Disability and Rehabilitation

SN - 0963-8288

IS - 2

ER -