Quality of life in older people receiving ADL help: Help, help providers, and complaints.

Research output: ThesisDoctoral Thesis (compilation)


title = "Quality of life in older people receiving ADL help: Help, help providers, and complaints.",
abstract = "The aim of this thesis was to investigate self-reported diseases and complaints, quality of life (QoL), help received with activities of daily living among older people and in relation to who provided the help, and in comparison with those without ADL help. The aim was also to investigate older people{\textquoteright}s experiences of receiving help. Data were collected using postal questionnaires in two population samples and one interview study. The first sample (Papers I, II, and III) included 1 248 people (age 75–99 years) living in ordinary homes, where 448 people received help and 793 did not. Of those 448 (mean age 84.2, SD 5.2, women 66%, married 34%, widowed 54%, and living alone 62%) 45.1% received help from only informal helpers, 14.3% from only formal helpers and 39.1% from a combination of informal and formal helpers. The second sample (Paper IV) included 1 247 people (aged 75–104 years, mean age 86.4, SD 5.9, women 73%, married 16%, widowed 68, and living alone 81%) receiving help. It consisted of people who received help either in ordinary homes, 73.7% (48.6% from only informal helpers, 21.2% from only formal helpers, 30.2% from a combination of informal and formal helpers) or in special accommodations, 26.3% (70.4% from only formal helpers and 29.6% from a combination of informal and formal helpers). People receiving help with ADL were mostly women, widowed, and living alone, had higher age, more children and a higher number of self-reported diseases and complaints, and were less able to be alone at home by themselves than those without help. Self-reported diseases were above all mainly musculoskeletal diseases, other circulatory diseases, eye diseases and hypertension and did not differ with regard to age. Complaints among people receiving help were musculoskeletal pain (78.6%), impaired mobility (68.8%), impaired hearing (58%) and impaired sight (57.7%) (Papers I and II). Those receiving help had significantly lower QoL than those without help (Paper II). People receiving help and living in special accommodation had significantly lower global QoL than those living in ordinary homes (Paper IV). Significant predictors of low global QoL among people receiving help were living alone, not managing to be alone at home (Papers I, II, and III), higher numbers of self-reported diseases (Paper IV) and higher number of complaints (Papers I, III, and IV), and help with IADL and PADL (Paper IV). Predictors of low HRQoL were help with PADL and higher number of self-reported diseases (Paper IV) among people receiving help. Higher age (Papers I, III, and IV) and social networks (Paper IV) were predictors of high global QoL and high HRQoL (MCS, SF-12). Predictors of receiving informal help at home were lower age, lower number of complaints, living together with someone, and being able to be alone at home, which was not the case for those receiving informal and formal help (Paper III). Living alone and having fewer children were predictors of receiving formal help, thus differing from receiving only informal help (Paper III). Interviews with 14 people (age 79–98 years, mean age 87.4, SD 6.8, married 28.6%, widowed 71.4%) receiving help either in ordinary homes or in special accommodation showed that in general they disliked the situation of receiving help and viewed themselves as not dependent. In conclusion, the thesis showed high involvement from informal helpers, although this differed from 84% to 79% in the two samples. High number of diseases and complaints, living alone, and not managing to stay alone at home had a negative influence on QoL. However, social network had the opposite influence on QoL among older people. The most frequent help with IADL was in cleaning and shopping and with PADL in bathing or showering.",
keywords = "Gerontology, living in special accommodations or ordinary homes., formal help, informal help, ADL help, social network, complaints, QoL, receiving help, Older people, nursing care, Gerontologi",
author = "Ylva Hellstr{\"o}m",
note = "Defence details Date: 2003-10-23 Time: 09:00 Place: Department of Nursing, Barav{\"a}gen 3, Lund External reviewer(s) Name: Asplund, Kenneth Title: Professor Affiliation: Mitth{\"o}gskolan Sundsvall --- Article: I. Hellstr{\"o}m, Y., & Hallberg, IR. Perspectives of elderly people receiving home help on health, care and quality of life. Health and Social Care in the Community. 2001. 9 (2), 61–71. Article: II. Hellstr{\"o}m, Y., Persson, G. & Hallberg, IR. Quality of life and complaints among elderly people with or without home help. Resubmitted to Journal of Advanced Nursing. Article: III. Hellstr{\"o}m, Y., & Hallberg, IR. Determinants and characteristics of help provision for old people living at home and in relation to quality of life. Submitted. Article: IV: Hellstr{\"o}m, Y., Andersson, M., & Hallberg, IR. Quality of life among older people receiving help from informal and/or formal helpers at home or special accommodation. Resubmitted to Health and Social Care in the Community. The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Caring Sciences (Closed 2012) (016514020)",
year = "2003",
language = "English",
isbn = "91-628-5773-8",
publisher = "Ylva Hellstr{\"o}m, Institutionen f{\"o}r omv{\aa}rdnad, P.O. Box 157, SE-221 00 LUND, SWEDEN,",
school = "Department of Health Sciences",