The European multistakeholder PanCareFollowUp project: novel, person-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for cancer survivors and caregivers

Research output: Contribution to journalArticle


Background: The majority of childhood cancer survivors are at risk of treatment-related adverse health outcomes. Survivorship care to mitigate these late effects is endorsed, but it is not available for many adult survivors of childhood cancer in Europe. The PanCareFollowUp project was initiated to improve their health and quality of life (QoL) by facilitating person-centred survivorship care. Methods: The PanCareFollowUp consortium was established in 2018, consisting of 14 project partners from ten European countries, including survivor representatives. The consortium will develop two PanCareFollowUp Interventions, including a person-centred guideline–based model of care (Care Intervention) and eHealth lifestyle coaching (Lifestyle Intervention). Their development will be informed by several qualitative studies and systematic reviews on barriers and facilitators for implementation and needs and preferences of healthcare providers (HCPs) and survivors. Implementation of the PanCareFollowUp Care Intervention as usual care will be evaluated prospectively among 800 survivors from Belgium, Czech Republic, Italy and Sweden for survivor empowerment, detection of adverse health conditions, satisfaction among survivors and HCPs, cost-effectiveness and feasibility. The feasibility of the PanCareFollowUp Lifestyle Intervention will be evaluated in the Netherlands among 60 survivors. Results: Replication manuals, allowing for replication of the PanCareFollowUp Care and Lifestyle Intervention, will be published and made freely available after the project. Moreover, results of the corresponding studies are expected within the next five years. Conclusions: The PanCareFollowUp project is a novel European collaboration aiming to improve the health and QoL of all survivors across Europe by developing and prospectively evaluating the person-centred PanCareFollowUp Care and Lifestyle Interventions. © 2021 Elsevier Ltd


External organisations
  • Princess Maxima Center for Pediatric Oncology/Hematology
  • Skåne University Hospital
  • PanCare, The Netherlands
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Nursing


  • Aftercare, Cancer survivors, Decision-making, Empowerment, Neoplasms, Patient-centred care, Practice guideline, Quality of life, Shared, Survivorship, Article, Belgium, caregiver, child, childhood cancer, childhood cancer survivor, controlled study, cost effectiveness analysis, Czech Republic, empowerment, feasibility study, follow up, health care access, health care quality, healthy lifestyle, human, information dissemination, interpersonal communication, Italy, lifestyle modification, Netherlands, practice guideline, Sweden, systematic review (topic), telehealth, total quality management
Original languageEnglish
Pages (from-to)74-85
Number of pages12
JournalEuropean Journal of Cancer
Publication statusPublished - 2021
Publication categoryResearch