The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands

Research output: Contribution to journalArticle

Abstract

Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7–8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to complete a premeeting online questionnaire to establish the biggest challenges that they face when managing patients. The concerns expressed were used to develop the agenda, which comprised a combination of formal presentations, case studies and informal workshops covering such topics as pharmacokinetics, laboratory assays and tailoring of treatment to individual patients. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE meeting 2015.

Details

Authors
  • Erik Berntorp
  • Daniel Hart
  • Maria Elisa Mancuso
  • Roseline d'Oiron
  • David Perry
  • Brian O'Mahony
  • Radoslaw Kaczmarek
  • Miguel Crato
  • John Pasi
  • Alec Miners
  • Katarina Steen Carlsson
  • Steve Kitchen
  • Françoise Boehlen
  • Paul Giangrande
  • Elizabete Cebura
  • Nanda Uitslager
  • Mehdi Osooli
  • Daniela Janeckova
  • Rosie Haldon
  • Gianna Franca Rivolta
Organisations
External organisations
  • Queen Mary University
  • Maggiore Hospital Policlinico
  • Bicêtre Hospital
  • University of Cambridge
  • Irish Haemophilia Society
  • Polish Haemophilia Society
  • Portuguese Haemophilia Society
  • London School of Hygiene and Tropical Medicine
  • IHE – The Swedish Institute for Health Economics
  • Royal Hallamshire Hospital
  • Geneva University Hospital
  • University of Oxford
  • University Children's Hospital
  • University Medical Center Utrecht
  • University Hospital Motol
  • Royal Free Hospital
  • Parma University Hospital
  • Skåne University Hospital
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Hematology

Keywords

  • clotting factor concentrates, haemophilia, laboratory assays, multidisciplinary, pharmacoeconomics, pharmacokinetics
Original languageEnglish
Pages (from-to)3-18
Number of pages16
JournalEuropean Journal of Haematology
Volume97
Publication statusPublished - 2016 Jul 1
Publication categoryResearch
Peer-reviewedYes