The Scandinavian Sarcoma Group Central Register: 6,000 patients after 25 years of monitoring of referral and treatment of extremity and trunk wall soft-tissue sarcoma

Research output: Contribution to journalArticle


Purpose — We wanted to examine the potential of the Scandinavian Sarcoma Group (SSG) Central Register, and evaluate referral and treatment practice for soft-tissue sarcomas in the extremities and trunk wall (STS) in the Nordic countries. Background — Based on incidence rates from the literature, 8,150 (7,000–9,300) cases of STS of the extremity and trunk wall should have been diagnosed in Norway, Finland, Iceland, and Sweden from 1987 through 2011. The SSG Register has 6,027 cases registered from this period, with 5,837 having complete registration of key variables. 10 centers have been reporting to the Register. The 5 centers that consistently report treat approximately 90% of the cases in their respective regions. The remaining centers have reported all the patients who were treated during certain time periods, but not for the entire 25-year period. Results — 59% of patients were referred to a sarcoma center untouched, i.e. before any attempt at open biopsy. There was an improvement from 52% during the first 5 years to 70% during the last 5 years. 50% had wide or better margins at surgery. Wide margins are now achieved less often than 20 years ago, in parallel with an increase in the use of radiotherapy. For the centers that consistently report, 97% of surviving patients are followed for more than 4 years. Metastasis-free survival (MFS) increased from 67% to 73% during the 25-year period. Interpretation — The Register is considered to be representative of extremity and trunk wall sarcoma disease in the population of Scandinavia, treated at the reporting centers. There were no clinically significant differences in treatment results at these centers.


  • Clement Trovik
  • Henrik C F Bauer
  • Kirsten Sundby Hall
  • Sigvard Eriksson
  • Ingela Johansson
  • Mika Sampo
  • Minna Laitinen
  • Anders Kalén
  • Halldór Jónsson
  • Nina L Jebsen
  • Erkki Tukiainen
  • Najme Wall
  • Olga Zaikova
  • Helgi Sigurðsson
  • Tuula Lehtinen
  • Bodil Bjerkehagen
  • Mikael Skorpil
  • Geir Egil Eide
  • Elisabeth Johansson
External organisations
  • Haukeland University Hospital
  • Karolinska University Hospital
  • Sahlgrenska University Hospital
  • Tampere University Hospital
  • Linköping University Hospital
  • Skåne University Hospital
  • University of Bergen
  • Oslo university hospital
  • Helsinki University Central Hospital
  • National University Hospital of Iceland
  • Norrland University Hospital
  • Norwegian Radium Hospital
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Orthopedics
Original languageEnglish
Pages (from-to)341-347
JournalActa Orthopaedica
Issue number3
Publication statusPublished - 2017 Mar 7
Publication categoryResearch