The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Research output: Contribution to journalArticle

Abstract

The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

Details

Authors
  • Yesim Dargaud
  • Daniel P. Hart
  • Sébastien Lobet
  • Maria Elisa Mancuso
  • Roseline d'Oiron
  • David Perry
  • Debra Pollard
  • Marijke van den Berg
  • Jan Blatný
  • Hervé Chambost
  • Andrea S. Doria
  • Pål André Holme
  • Radoslaw Kaczmarek
  • Lorenzo Mantovani
  • Paul McLaughlin
  • Lochana Nanayakkara
  • Pia Petrini
  • Thomas Sannié
  • Edward Laane
  • Raquel Maia
  • Athina Dettoraki
  • Anna Farrell
  • Susan Halimeh
  • Sayma Raza
  • Stephanie Taylor
Organisations
External organisations
  • Centre de Recherche en Cancérologie de Lyon
  • Queen Mary University
  • Saint-Luc University Hospital
  • Maggiore Hospital Policlinico
  • Bicêtre Hospital
  • University of Cambridge
  • University College London
  • Utrecht University
  • Masaryk University
  • Aix-Marseille University
  • Hospital for Sick Children, Toronto
  • University of Toronto
  • Oslo university hospital
  • Ludwik Hirszfeld Institute of Immunology and Experimental Therapy
  • European Institute of Oncology
  • Barts Health NHS Trust
  • Karolinska University Hospital
  • Association Française des Hémophilies (AFH)
  • North Estonia Medical Centre
  • Dona Estefânia Hospital
  • Aghia Sophia Children's Hospital
  • Bristol Royal Hospital for Children
  • Gerinnungszentrum Rhein-Ruhr
  • Great Ormond Street Hospital
  • University of Oxford
  • Oxford University Hospital
  • Skåne University Hospital
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Hematology

Keywords

  • clotting factor concentrates, genetics, haemophilia, laboratory assays, multidisciplinary, real-life data
Original languageEnglish
Pages (from-to)1-15
Number of pages15
JournalEuropean Journal of Haematology
Volume98
Issue numbers85
Publication statusPublished - 2017 Jan 1
Publication categoryResearch
Peer-reviewedYes