The Swedish Neonatal Quality Register – contents, completeness and validity

Research output: Contribution to journalArticle

Abstract

Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers. Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers’ agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years. Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24–34, completeness of SNQ was 98–99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers. Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.

Details

Authors
  • The SNQ Collaboration
  • Mikael Norman
  • Karin Källén
  • Erik Wahlström
  • Stellan Håkansson
Organisations
External organisations
  • Karolinska Institutet
  • Karolinska University Hospital
  • Socialstyrelsen / Swedish National Board of Health and Welfare
  • Umeå University
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Pediatrics
  • Public Health, Global Health, Social Medicine and Epidemiology

Keywords

  • Completeness, Newborn infant, Quality of neonatal care, Register, Validation
Original languageEnglish
JournalActa Paediatrica, International Journal of Paediatrics
Publication statusE-pub ahead of print - 2019 Apr 24
Publication categoryResearch
Peer-reviewedYes