Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

Research output: Contribution to journalArticle

Abstract

Background: There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument. Methods: The PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis. Results: Analysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument. Conclusions: Translation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families. Level of evidence: Not rateable.

Details

Authors
  • Ieva Maulina
  • Inta Zepa
  • Triin Jagomägi
  • Nenad Tanaskovic
  • Predrag Knežević
  • Radost Velikova
  • Youri Anastassov
  • Julija Radojićić
  • Zoran Pesic
  • Branislav Trifunović
  • Martina Drevensek
  • Radu Spataru
  • Tanja Boljevic
  • Radmila Dimovska
  • Slave Naumovski
  • Nichola Rumsey
  • Fabio Zucchelli
  • Nicholas Sharratt
  • Mario Argyrides
  • Martin Persson
Organisations
External organisations
  • Riga Stradins University
  • University of Tartu
  • Medical University of Plovdiv
  • University of Niš
  • University of Belgrade
  • University of Ljubljana
  • Carol Davila University of Medicine and Pharmacy
  • University of the West of England
  • Skåne University Hospital
  • University of Banja Luka
  • Dubrava University Hospital
  • University of Montenegro
  • MIT University Skopje
  • The Saints Cyril and Methodius University of Skopje
  • Neapolis University Paphos
  • Kristianstad University
Research areas and keywords

Subject classification (UKÄ) – MANDATORY

  • Health Care Service and Management, Health Policy and Services and Health Economy
  • Other Medical Sciences not elsewhere specified

Keywords

  • Cleft lip and/or cleft palate, International cooperation, Patient reported outcomes, Qualitative results, Translation
Original languageEnglish
JournalEuropean Journal of Plastic Surgery
Publication statusE-pub ahead of print - 2019
Publication categoryResearch
Peer-reviewedYes