Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

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Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). / von Mackensen, S.; Nilsson, Cecilia; Jankovic, M.; Mirra, N.; D'Angelo, E.; Borkhardt, A.; Ljung, Rolf.

I: Pediatric Blood & Cancer, Vol. 47, Nr. Suppl.5, 2006, s. 688-691.

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von Mackensen, S. ; Nilsson, Cecilia ; Jankovic, M. ; Mirra, N. ; D'Angelo, E. ; Borkhardt, A. ; Ljung, Rolf. / Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). I: Pediatric Blood & Cancer. 2006 ; Vol. 47, Nr. Suppl.5. s. 688-691.

RIS

TY - JOUR

T1 - Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

AU - von Mackensen, S.

AU - Nilsson, Cecilia

AU - Jankovic, M.

AU - Mirra, N.

AU - D'Angelo, E.

AU - Borkhardt, A.

AU - Ljung, Rolf

PY - 2006

Y1 - 2006

N2 - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.

AB - Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.

KW - children

KW - ITP

KW - quality of life

U2 - 10.1002/pbc.20977

DO - 10.1002/pbc.20977

M3 - Article

C2 - 16933256

VL - 47

SP - 688

EP - 691

JO - Pediatric Blood & Cancer

JF - Pediatric Blood & Cancer

SN - 1545-5017

IS - Suppl.5

ER -