Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

Abstract

Background To assess the feasibility and psychosocial impact of a hospital-based home care (HBHC) program for children with cancer. Procedure A HBHC program was carried out with 51 children (018 years) with cancer to assess its feasibility in terms of satisfaction, care preferences, safety, and cost. A controlled trial was conducted to assess children's health-related quality of life (HRQOL) using the parent-reported and self-reported PedsQL Generic Core Scale and PedsQL Cancer Module, and the psychosocial impact on the family by PedsQL Family Impact Module comprising a subsample of 28 children and 43 parents in the home care group, and 47 children and 66 parents receiving standard hospital care. Results All parents in the HBHC program were satisfied and preferred home care. There were no serious adverse events associated with HBHC, and costs did not increase. When adjusting for age, gender, diagnosis and time since diagnosis, we found significant higher HRQOL scores in parent-reported physical health (P=0.04; 95% confidence interval (CI): 0.219.5) and worry (P=0.04; 95% CI: 0.420.6) in the home-care group indicating better physical health and less worry for children in the home-care group. No significant difference was found in the Family Impact Module. Conclusion This study indicates that HBHC is a feasible alternative to hospital care for children with cancer, and is greatly preferred by parents. Specific aspects of children's HRQOL may be improved with HBHC and the psychosocial burden on the family does not increase. Pediatr Blood Cancer 2013; 60: 865872. (c) 2013 Wiley Periodicals, Inc.

Detaljer

Författare
  • Helena Hansson
  • Hanne Kjaergaard
  • Christoffer Johansen
  • Inger Hallström
  • Jane Christensen
  • Marianne Madsen
  • Kjeld Schmiegelow
Enheter & grupper
Forskningsområden

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Pediatrik

Nyckelord

Originalspråkengelska
Sidor (från-till)865-872
TidskriftPediatric Blood & Cancer
Volym60
Utgåva nummer5
StatusPublished - 2013
PublikationskategoriForskning
Peer review utfördJa

Related projects

Inger Kristensson Hallström, Boris Magnusson, Björn Lindgren, Kristofer Hansson, Hanne Kristine Hegaard, Irén Tiberg, Kajsa Landgren, Mulatu Biru Shargie, Annelie Carlsson, Linda Kvist, Maria Ekelin, Mariette Derwig, Jonas Björk, Katarina Steen Carlsson, Malin Skoog, Åsa Lefèvre, Helena Hansson, Eva-Kristina Persson, Petra Pålsson, Degu Jerene, Markus Idvall, Staffan Bergström, Björn A Johnsson, Anna-Karin Dykes, Lena-Karin Erlandsson, Marie Edwinson Månsson, Vanja Berggren, Kjeld Schmiegelow, Bo Selander, Anders Castor, Gabriella Nilsson, Eva Nordmark, Annica Sjöström-Strand, Jenny Gårdling, Ragnhild Måstrup, Pia Lundqvist, Charlotte Castor, Bengt Sivberg, Angela Afua Quaye & Magnus C Persson

Swedish Council for Working Life and Social Research (Forte), Fanny Ekdahls Stiftelse, Crafoordska stiftelsen, Ekhagastiftelsen, Barncancerfonden, Länsstyrelsen i Östergötlands län, Diabetesfonden - Stiftelsen Svenska Diabetesförbundets Forskningsfond, Region Skåne, Swedish Research Council

2013/01/01 → …

Projekt: Forskning

Inger Kristensson Hallström, Maria Björk, Thomas Wiebe, Erna Törnqvist, Jenny Gårdling, Marie Edwinson Månsson, Charlotte Castor, Kajsa Landgren, Helena Hansson, Kjeld Schmiegelow & Hanne Kristine Hegaard

Barncancerfonden

2003/01/01 → …

Projekt: Forskning

Visa alla (3)