Long-term survivors of childhood cancer: cure and care—the Erice Statement (2006) revised after 10 years (2016)

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

Abstract

Purpose: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. Methods: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778–80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. Results: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. “Cure” refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child. Conclusions and implication for cancer survivors: Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).

Detaljer

Författare
  • Momcilo Jankovic
  • Riccardo Haupt
  • John J. Spinetta
  • Joern D. Beck
  • Julianne Byrne
  • Gabriele Calaminus
  • Herwig Lackner
  • Andrea Biondi
  • Kevin Oeffinger
  • Melissa Hudson
  • Roderick Skinner
  • Gregory Reaman
  • Helena van der Pal
  • Leontien Kremer
  • Jaap Den Hartogh
  • Gisela Michel
  • Eva Frey
  • Edit Bardi
  • Michael Hawkins
  • Katie Rizvi
  • Monica Terenziani
  • Maria Grazia Valsecchi
  • Gerlind Bode
  • Meriel Jenney
  • Florent de Vathaire
  • Stanislaw Garwicz
  • Gill A. Levitt
  • Desiree Grabow
  • Claudia E. Kuehni
  • Martin Schrappe
  • Lars Hjorth
  • participants in PanCare
Enheter & grupper
Externa organisationer
  • San Gerardo Hospital
  • San Diego State University
  • Boyne Research Institute
  • Medical University of Graz
  • St Jude Children´s Research Hospital, Memphis
  • University of Newcastle upon Tyne
  • Academic Medical Center
  • University of Lucerne
  • St. Anna Children's Hospital
  • University of Birmingham
  • Istituto Nazionale dei Tumori
  • Childhood Cancer International (CCI)
  • Skåne University Hospital
  • Universitätsmedizin Mainz
  • University Medical Center Schleswig-Holstein Campus Kiel
  • Gaslini Children's Hospital
  • Friedrich-Alexander University Erlangen-Nürnberg
  • University of Lübeck
  • Universitätsklinikum Bonn
  • Duke Cancer Institute
  • George Washington University
  • Emma Children’s Hospital
  • Princess Maxima Center for Pediatric Oncology/Hematology
  • Dutch Childhood Cancer Parent Organisation (VOKK)
  • Semmelweis University
  • Kepler Universitätsklinikum
  • Youth Cancer Europe
  • University of Milano-Bicocca
  • Children’s Hospital for Wales
  • University of Paris-Saclay
  • Great Ormond Street Hospital for Children NHS Foundation Trust
  • University of Bern
Forskningsområden

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Cancer och onkologi

Nyckelord

Originalspråkengelska
Sidor (från-till)647-650
TidskriftJournal of Cancer Survivorship
Volym12
Utgivningsnummer5
Tidigt onlinedatum2018 jun 26
StatusPublished - 2018
PublikationskategoriForskning
Peer review utfördJa