Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy

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Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy. Design: A descriptive, qualitative cross-sectional interview study. Methods: Nineteen patients were interviewed between December 2015–August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed. Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity. Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.


  • Marie Louise Möllerberg
  • Ulrica Langegård
  • Emma Ohlsson-Nevo
  • Per Fransson
  • Birgitta Johansson
  • Karin Ahlberg
  • Katarina Sjövall
Enheter & grupper
Externa organisationer
  • Sahlgrenska Academy
  • Örebro University
  • Umeå University
  • Norrland University Hospital
  • Uppsala University Hospital
  • Skåne University Hospital
  • Research Institutes of Sweden (RISE)

Ämnesklassifikation (UKÄ) – OBLIGATORISK

  • Omvårdnad


Sidor (från-till)1157-1163
Antal sidor7
TidskriftNursing Open
Utgåva nummer4
Tidigt onlinedatum2020 apr 14
StatusPublished - 2020 jul
Peer review utfördJa