Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments

Forskningsoutput: TidskriftsbidragÖversiktsartikel

Standard

Measuring the impact of dermatological conditions on family and caregivers : a review of dermatology-specific instruments. / Sampogna, Francesca; Finlay, Andrew Y.; Salek, Sam S.; Chernyshov, P.; Dahlgard, F.J; Evers, A W M; Linder, D.; Manolache, L.; Marron, Servando E.; Poot, Francoise; Spillekom-van Koulil, S.; Svensson; Szepietowski, Jacek C.; Tomas-Aragones, Lucia; Abeni, D.; the European Academy of Dermatology and Venereology TaskForce on Quality of Life.

I: Journal of the European Academy of Dermatology and Venereology, Vol. 31, Nr. 9, 01.09.2017, s. 1429-1439.

Forskningsoutput: TidskriftsbidragÖversiktsartikel

Harvard

Sampogna, F, Finlay, AY, Salek, SS, Chernyshov, P, Dahlgard, FJ, Evers, AWM, Linder, D, Manolache, L, Marron, SE, Poot, F, Spillekom-van Koulil, S, Svensson, Szepietowski, JC, Tomas-Aragones, L, Abeni, D & the European Academy of Dermatology and Venereology TaskForce on Quality of Life 2017, 'Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments', Journal of the European Academy of Dermatology and Venereology, vol. 31, nr. 9, s. 1429-1439. https://doi.org/10.1111/jdv.14288

APA

Sampogna, F., Finlay, A. Y., Salek, S. S., Chernyshov, P., Dahlgard, F. J., Evers, A. W. M., ... the European Academy of Dermatology and Venereology TaskForce on Quality of Life (2017). Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. Journal of the European Academy of Dermatology and Venereology, 31(9), 1429-1439. https://doi.org/10.1111/jdv.14288

CBE

Sampogna F, Finlay AY, Salek SS, Chernyshov P, Dahlgard FJ, Evers AWM, Linder D, Manolache L, Marron SE, Poot F, Spillekom-van Koulil S, Svensson, Szepietowski JC, Tomas-Aragones L, Abeni D, the European Academy of Dermatology and Venereology TaskForce on Quality of Life. 2017. Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. Journal of the European Academy of Dermatology and Venereology. 31(9):1429-1439. https://doi.org/10.1111/jdv.14288

MLA

Vancouver

Author

Sampogna, Francesca ; Finlay, Andrew Y. ; Salek, Sam S. ; Chernyshov, P. ; Dahlgard, F.J ; Evers, A W M ; Linder, D. ; Manolache, L. ; Marron, Servando E. ; Poot, Francoise ; Spillekom-van Koulil, S. ; Svensson ; Szepietowski, Jacek C. ; Tomas-Aragones, Lucia ; Abeni, D. ; the European Academy of Dermatology and Venereology TaskForce on Quality of Life. / Measuring the impact of dermatological conditions on family and caregivers : a review of dermatology-specific instruments. I: Journal of the European Academy of Dermatology and Venereology. 2017 ; Vol. 31, Nr. 9. s. 1429-1439.

RIS

TY - JOUR

T1 - Measuring the impact of dermatological conditions on family and caregivers

T2 - a review of dermatology-specific instruments

AU - Sampogna, Francesca

AU - Finlay, Andrew Y.

AU - Salek, Sam S.

AU - Chernyshov, P.

AU - Dahlgard, F.J

AU - Evers, A W M

AU - Linder, D.

AU - Manolache, L.

AU - Marron, Servando E.

AU - Poot, Francoise

AU - Spillekom-van Koulil, S.

AU - Svensson, null

AU - Szepietowski, Jacek C.

AU - Tomas-Aragones, Lucia

AU - Abeni, D.

AU - the European Academy of Dermatology and Venereology TaskForce on Quality of Life

PY - 2017/9/1

Y1 - 2017/9/1

N2 - The patient is the centre of a web of relationships, and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in primary caregivers of children with atopic dermatitis, QPCAD; Childhood Atopic Dermatitis Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, EB-BoD), one of ichthyosis (Family Burden Ichthyosis, FBI), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, FDLQI). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and caregivers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.

AB - The patient is the centre of a web of relationships, and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in primary caregivers of children with atopic dermatitis, QPCAD; Childhood Atopic Dermatitis Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, EB-BoD), one of ichthyosis (Family Burden Ichthyosis, FBI), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, FDLQI). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and caregivers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.

KW - Dermatology

KW - family

KW - caregivers

UR - http://www.scopus.com/inward/record.url?scp=85029370705&partnerID=8YFLogxK

U2 - 10.1111/jdv.14288

DO - 10.1111/jdv.14288

M3 - Review article

VL - 31

SP - 1429

EP - 1439

JO - Journal of the European Academy of Dermatology and Venereology

JF - Journal of the European Academy of Dermatology and Venereology

SN - 1468-3083

IS - 9

ER -