Occupational balance among family members of people in palliative care

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Occupational balance among family members of people in palliative care. / Nissmark, Sofia; Malmgren Fänge, Agneta.

I: Scandinavian Journal of Occupational Therapy, 07.2018.

Forskningsoutput: TidskriftsbidragArtikel i vetenskaplig tidskrift

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TY - JOUR

T1 - Occupational balance among family members of people in palliative care

AU - Nissmark, Sofia

AU - Malmgren Fänge, Agneta

PY - 2018/7

Y1 - 2018/7

N2 - Background: Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. Objective: To explore occupational balance, needs and roles among family members to persons in palliative care. Methods: Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. Result: An overarching theme Striving for control while being in the disease, and two categories Changing roles and occupations in the family; and Handling emotions in the end of life emerged from the data. Conclusion: The findings suggest that family members could benefit from strategies to maintain valued roles and occupations, and that palliative care provision need to develop new ways to take family members needs into consideration.

AB - Background: Today people can live a long time with a chronic cancer diagnosis, and it affects the entire family. Family members to patients in palliative care often have to leave valued occupations due to lack of time and energy, while new roles are forced upon them, potentially affecting their health. Objective: To explore occupational balance, needs and roles among family members to persons in palliative care. Methods: Six semi-structured interviews were conducted with family members to terminally ill persons enrolled to specialized palliative care. A qualitative content analysis guided the data collection and analysis. Result: An overarching theme Striving for control while being in the disease, and two categories Changing roles and occupations in the family; and Handling emotions in the end of life emerged from the data. Conclusion: The findings suggest that family members could benefit from strategies to maintain valued roles and occupations, and that palliative care provision need to develop new ways to take family members needs into consideration.

KW - activity

KW - cancer

KW - content analysis

KW - family caregiver

KW - qualitative interviews

KW - Relative

U2 - 10.1080/11038128.2018.1483421

DO - 10.1080/11038128.2018.1483421

M3 - Article

JO - Scandinavian Journal of Occupational Therapy

T2 - Scandinavian Journal of Occupational Therapy

JF - Scandinavian Journal of Occupational Therapy

SN - 1651-2014

ER -