Parents' experiences of their child being admitted to a paediatric intensive care unit: a qualitative study–like being in another world

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Bibtex

@article{258799232d4f419e8b3f9d08e6db8e91,
title = "Parents' experiences of their child being admitted to a paediatric intensive care unit: a qualitative study–like being in another world",
abstract = "Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing {\textquoteleft}such experiences{\textquoteright} could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation. Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit. Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis. Result: The analysis revealed two categories: {\textquoteleft}being involved{\textquoteright} and {\textquoteleft}being informed{\textquoteright} with seven subcategories: {\textquoteleft}caring for the parents{\textquoteright}, {\textquoteleft}security and trust{\textquoteright}, {\textquoteleft}altering the parental role{\textquoteright}, {\textquoteleft}stress and fear{\textquoteright}, {\textquoteleft}the importance of knowing{\textquoteright}, {\textquoteleft}interaction in the care process{\textquoteright} and {\textquoteleft}being prepared{\textquoteright}. An overarching theme emerged: the experience was {\textquoteleft}like being in another world{\textquoteright}. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care. Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.",
keywords = "content analysis, family-centred care, paediatric intensive care, parents' experiences, qualitative study",
author = "Pia Dahav and Annica Sj{\"o}str{\"o}m-Strand",
year = "2018",
month = mar,
day = "1",
doi = "10.1111/scs.12470",
language = "English",
volume = "32",
pages = "363--370",
journal = "Scandinavian Journal of Caring Sciences",
issn = "1471-6712",
publisher = "Wiley-Blackwell",
number = "1",

}